The pain of memories…

So some days there are moments when your head just explodes. Sometimes it is a result of not enough caffeine (rare in my house) or not enough sleep (becoming the norm), and sometimes it is fall-out from interacting with others. For me, it has been a combination of moving (the physicality of it all, in addition to the emotional stress of relocating) and of trying to restore order and normalcy to our life habits, in addition to the preparation for my mom to come and live with us. So much change!!

My true pain came from a FaceTime session with my ailing mom. I realized how much this stupid disease is stealing from us all. She had no idea who my grandchildren were, nor did she truly understand what she was seeing. I took her on a tour of our new home, and showed her the room she would be living in, as well as her bathroom. Her comment was, “Well, at least I don’t have to go outside in the snow to go pee.” And we chuckled at it. (She has some odd, but common, misconceptions about life in the “Last Frontier”).  And then, as I walked from the bathroom, around a corner, to the living room, she asked me, “Are you ever going to move to a bigger house?” She was back to the house we just moved from, in her mind. It took about 3 minutes. And when my sister and I reminded her that she could not stay where she is, she said, “I’m not leaving here until I die.” And she was adamant about it. My sister and I exchanged looks, knowing this will be such a hard transition for her – for all of us, really.

But what prepares us for this process? Not much, really. I have not taken a course on caring for aging parents (I probably should look into that). I know my mom will probably become a toddler again, in some ways. It hurts my heart for her and her dignity. And dreams we all had of growing old and sharing our children and grandchildren. I am hoping that being around my grandchildren will energize her (or wear her out! Ha-Ha!).

And I am confused, as well, by all this information I keep seeing about why the preponderance of dementia and Alzheimer’s disease is so rampant in the USA – some link it to our diets, some to our sedentary life style, or processed foods, or the mercury in all those old vaccinations we were forced to get in the 40s and 50s and 60s. There are now so many dementia patients who are only in the their 40s! And it is not in Europe or elsewhere as pronounced as it is in America. I question standard medical practice and embrace much that is considered alternative. Why? Well, I grew up around medicine and I know they play at it. I have seen doctors create solutions on the fly, going against normal procedures on a whim, and having it work out better than what they would have achieved, had they not been creative. I have seen chemical mistakes turn into cures. My brother broke his hand – crushed his fingers – on a Saturday afternoon when he was, I believe, 14 or 15. He was one of the star running backs at our high school. Did my dad rush him to the local ER? No. He drove him about an hour away, after having called his friends (no cell phones in those days) who met him at the hospital where they all had faculties, and they experimented and came up with a casting system (it was replaced several times during the season) that would allow him to pass the referee’s requirements thereby keeping the season intact. Did my parents pay for that? They did not. Did my brother get excellent medical attention? You bet he did. But medicine and research of his incident was used as the payment. He was their guinea pig. My point? Science can be flexible. There are thousands of stories of doctors and staff using their families as guinea pigs. So I know there is stuff going on out there, for this horrid disease. I also KNOW that big pharma has a hand in all of this. Why cure Alzheimer’s and dementia when there is money to be made off the victims? Why cure many of these horrible diseases when healthy patients don’t need to see their doctor or take their medications as often or as long? When did medicine become pharmacy instead of prevention?? When did dietary and exercise advice become a prescription or a surgical procedure? When did doctors stop treating the person and just focus on the symptom?? It makes my head spin.

After my frustrating FaceTime with my mom, with my head exploding, I laid down on my bed. I diffused lavender essential oil on my dresser. I cuddled with my cat. I cried for my mom. I cried for my kids and grandchildren, too. I have a parent with Alzheimer’s, which means it is more likely I may get it, too. My dad has Parkinson’s Dementia. (I am not sure about my possibility for Parkinson’s, but it is out there). But it seems like the medication he is taking keeps him more with us than when he was first diagnosed. (Shocking result, to be honest. I seriously doubt our pharmaceutical world). He is having more Parkinson’s symptoms and less of the dementia, although he had to stop driving. He has a hard time even walking some days. His speech today was slurred, but as we spoke longer, his voice got steadier and we had a great conversation. I cried. I know my parents are leaving me. And I realized how lonely that can leave you, even with a spouse, children, and siblings left behind with you. And I cried for my future. How long do I have with my husband and children, and grandchildren? Moving exhausts you; it truly does. I am pretty spent. And the future is just so cloudy, surrounded by lots of tears.

I will rise up. I know I will. My exhaustion brings on melancholy and thinking. Ha-Ha. Maybe I just need that cup of tea and a break! I know my world will continue through my sons, daughters-in-law, and grandchildren. And I know I have lots of time to spend with them, making memories for them to hold after I am gone. Right now, I am still facing a garage full of boxes. Many of them contain my memories. So I will bask in those wonderful memories, as well as embrace what is before me. I will also prepare for my future. My hubby and I realize we need to return to our Whole30 eating regime and add back in some supplements for our future health. We need to stop being lazy in food and meal prep, as well as getting ourselves healthier. Mindwise is back on the menu for me!

I still may have to escape to the mountains for some much needed respite. And believe me, I know that sounds funny, coming from someone who lives in Alaska, in a town of just 8,845 people! But the mountains do call to you! Almost as much as all this green growing all around me gives me peace, the mountains give me stability. I know I am tired. And I know I am blessed. I also know summer is coming. The sun will help. So does God. 

 

 

“…I don’t have to worry about you anymore…”

With Facebook, if you are not familiar with it, you are given prompts each day as you log on to your account, to view posts from that same date in years gone by. They will show you things you have posted on that same date, each year you have had a Facebook account. It is kind of cool. And today I was reminded of some blog posts I had put on Facebook. One was from just two years ago and it was about me and my dad, communicating on a different level. I remarked that we were communicating as peers, and not in that authoritative/subordinate thing we get into with parents. And I was rejoicing. Because it was so very different.

I actually remember dancing with my dad like this. We were on vacation, I think we were up in Northern California, near to Lake Shasta. We were staying at this lodge/hotel place and each evening, we got fancy for dinner (well, it was the 1950s and that is how you did dinner in those days. Fast food had not been invented, yet. I have a story about that, too!). And the orchestra played that wonderful song, “Thank Heaven for Little Girls” by Maurice Chevalier, and my dad asked me to dance with him. It makes me cry to think about now. What a precious memory. I believe we have photos somewhere from that vacation. My dad is the same number of years older than me, that I am from my oldest son. And so I measure things with him, to my relationship with my son. I can clearly recall my son and I at this stage, too. Soon, he will be at the same place with his daughter. It’s one of those “circle of life” moments where disparate things gel into a linear relationship and you can clearly see how connected they are.

Ahhh…the 1970s. Gotta love those pants. Yeah; that happened. And something happened with me and my dad. We argued – a lot. I spent a lot of my teen years on restriction for some broken rule or another. I totally get that phase. I cut my long, long straight blonde hair into a Dorothy Hamill haircut. And entered college. When your world explodes because your knowledge is exploding, relationships at home explode. It seems like pretty much all of my friends had explosions here and there with their parents. My parents were “too old school” and too “out of touch,” and being British, just weird. And funnily enough my youngest son recently told me that he and his brothers all think my husband and I are “old school parents.” I sort of took that as a compliment. Ha-Ha. I don’t think that was the reaction he had expected!

Me and my Dorothy Hamill wedge haircut exploded into the world. And my dad was often left out, shaking his head at my choices and decisions. Somehow, in amongst all that exploding that was going on, I kept finding myself at Church in some form or another. I went to the Mormon Church, I explored Judaism, I loved Zoroastrianism. (Zoroastrianism is one of the world’s oldest monotheistic religions. It was founded by the Prophet Zoroaster in ancient Iran approximately 3500 years ago). I drove my parents nuts when I left my law/medical leaning education for Anthropology. They stopped supporting that exploration because they could not see how it would do anything for a career for me. I compromised by majoring in Forensic Anthropology and Physiology, with a minor in Biblical Archeology. That way, I was still in science (to make my dad happy) and yet I could study history in a concrete way. It made, and still does make, for interesting conversations. I can even recall arguing with my grandpa (my dad’s dad) about Scottish Rite Masonic influences in society, the evils of smoking, and his problem with unions. And my dad always stayed out of those! Ha-Ha! Smart guy! I did cause some concern when I entered the Catholic Church in my late 20s. I think he still has doubts about where my faith is. But regardless of where I stand or where he stands, I still share with him my faith. I share the Psalms with him, and many of the Scriptures that bring me peace, hoping he can grab onto some of that, too. I had sent him an email a few weeks ago, with all these quotes from the Scriptures for him. I thought if he printed it out, he could look at it and find comfort. I did not realize then, how poorly his health had become and that he no longer uses his computer, or even reads. So now, I share verbally with him, when I can.

These day, however, conversations with my dad are never predictable. He has Parkinson’s Dementia, or Lewy Body Dementia, or Parkinson’s with Lewy Body Disease. Whatever way you slice it, my dad is fading away. And very quickly. In many LBD (Lewy Body Disease) patients, their ability to process information and be cognizant in a conversation becomes greatly hampered, until there is no true conversing going on. They suffer hallucinations and become easily paranoid. They can also become increasingly angry and violent. And because of all of that, I am mourning my dad already. He is still with us, but his decline is becoming so very rapid. He is 90 years old. And he has admitted during his lucid moments, that he is just tired. And it makes me sad. The man I danced with can barely walk with his walker. Sometimes there is humor in that, because he did fall last week and no one saw him laying in his driveway. He could not get up but happened to have his camera with him. So, being the creative guy he is, he laid there taking photos of ants and dirt and other bugs. (He loves Macro-photography). He remembered what had happened and related it to me, all the while laughing about it. It was one of our good conversations.

And today I am psyching up to give him a call. Because with this disease, we just don’t know how he will answer the phone. Last week he did not want to talk at all…he was in an angry phase. And a day before that, we were laughing at his walker episode in the driveway. And I have to prepare for those bad days. I pray for good ones, but I prepare for the bad ones. I have also come to realize that quality of life is truly a concern. With all the dementia styles in our extended family, I have come to see that quite often, if our loved ones knew how they were behaving, they would be mortified. And so I pray for them to find peace. To find calm. To find gentle. And to feel the love we have for them. And I find myself expecting the man in the photo below, whenever I speak to him. But I need to drill it into myself, that is not who answers the phone. Today, I am sad about that. Life is going on and moving past us. I recall a conversation between my dad and his dad. We were walking into a party to celebrate my grandparent’s 60th wedding anniversary. I was carrying my oldest son on my hip as a baby. My grandpa said to my dad, “Well, son, I guess you’re old enough now that I don’t have to worry about you anymore.” We all laughed as my dad said, “Gee, thanks, Dad. You do realize I am 60 years old, right?” And here I am, ready to chat to my 90 year old dad, and I am 60. There’s that “circle of life” thingy again…cue the music from the Lion King…I’m going to call my dad, now. Love you, Daddy. I do. Already missing you…and missing the “us” we didn’t get to have.

 

“I am a sojourner…”

It was a loo-oo-oo-ng weekend. Hubby flew out of state to see his mom in the middle of the week, and I was here, trying to motivate our youngest, who is suffering with an extreme case of senioritis, and I was doing that among a myriad of other goings-on. And in the middle of all my personal chaos, I was blessed to have lunch with a newly-made friend. I really enjoy her company. We went to this restaurant that has been around forever. It is decorated in typical-tourist-Alaska style with rocks and bears and mining tools. But it is just such a fun place to hang around. The servers are genuine people. The menu is simple fare and I had the best BLT I have had in ages. It was a double-decker and the fries were to die for. They even left us an entire pot of coffee! What more could two gabbing women ask for?? Ha-Ha! And we were there for 3 and a half, gloriously uninterrupted, hours on a Saturday afternoon. We gabbed, we shared, we laughed; I really enjoyed myself. Oh, and we ate, too! LOL!

The hubby dragged himself in late this afternoon, after the airlines lost his luggage, and then found it again, and after he stopped at the auto supply store to get oil…and then he put oil in our son’s car…he was so tired. And tomorrow at some ungodly hour, which I will be sleeping through, he jets off again for a week of work away from home. With no respite in-between. We knew he’d be squeezing in his visit to his mom, but did not realize how tired he would be.

We are on the precipice of great change in our lives. Our parents are aging and are all at points where their health is not good – at all. We are making huge changes and altering many lives in just a few weeks. And helping to support family members facing their own issues. It seems like we are just waiting for the first domino to fall…and then the rest will follow suit.

We bought a house. Which my middle son told me was the first thing on our list. I guess it is a list. I had not thought of it that way. I read an article today about making lists in our lives to encourage our growth in faith. We need to add things to do, to make time to do all the important things. Things like praying. And reading Scripture. And actually going to church. We are all in different places in our journey to our forevers. My steps are just that – my steps. You may be leaps and bounds ahead of where I would like to be, or perhaps I can turn back and see you, trudging along behind me, making your way.

“I am a sojourner in the land; do not hide your commandments from me.”    Psalm 119:19 

This quote from Psalms stuck with me because I think it describes what we are going through. It is like we are all moving towards that goal – eternity – and many of us are much closer than others. Many of us have taken direct routes, while others of us have a very convoluted journey. Our family is a mixed bag of believers, non-believers; those who practice their faith and those who tolerate faith in their lives. And as a family, it feels like we are making decisions and checking things off our lists, making the pathway a little clearer. And I think that for the first time in my life, I am feeling the journey.

We wake to that alarm, we drink our coffee, we head out into the world. It is the daily grind. We get into traffic and make our way along. But every so often, something happens that makes you draw a quick breath and stop. And in that pause, you can feel the movement, the journey, right beneath your feet. Or within the pumping of the blood through your veins. Or in each breath you subsequently draw in. And in that next moment, the world is different. We sense it; we know it; but some of us refuse to recognize it in any real, and tangible, way. And when people refuse to acknowledge these pivotal moments, they react in sometimes odd ways.

Quite often, when we sense change coming, we react in anger, directed towards where all that movement is coming from. Sometimes people lash out at those they love, because they fear the changes, the movement, the momentum towards whatever it is they sense is coming.

And when we are dealing with our aging family members who are suffering disease, and all the effects on their bodies, minds, and souls, we can witness moments of lashing out and anger, which is brought on, I believe, through frustration. We have all seen images of little old ladies sitting around tables looking ready for a date, and none of them are speaking – they are staring off into their minds and their pasts. And sometimes you see others in nursing homes or in hospitals, who are yelling and angry at the world. We all react differently to changes in our world, our lives, our bodies, and our minds. It is part of our journey. We bought a house, to bring my mom home with us for the last section of her journey. And we’re all a little agitated. It has been over 40 years since my mom and I lived under the same roof. The hubby and son have claimed part of the 3rd garage as their “space.” Do not blame them, at all. And mom, due to her aging and suffering with Alzheimer’s, doesn’t do change well.

Tonight, as I sat in Church, I prayed for my entire family. My blood family, and my extended family. We fondly refer to extended family members as the “married-ins.” Ha-Ha. I am a “married in” to my husband’s large family, as he is to my much smaller, but fractured family. And I prayed for my friends. My long time friends, and my new friends. I prayed for my sons and their families, and my youngest son (the senior-itis boy!!) as he comes to the close of his high school experience and embarks on his career. Because this journey we are all on, well, we come together once in awhile and we share the road together. And sometimes we need to rely on family and friends to help us navigate this path we are on. It’s when we lean on each other.  And so I prayed for us all.

“Do not cast me away when I am old; do not forsake me when my strength is gone.” Psalm 71:9

“Even when I am old and gray, do not forsake me, my God, till I declare your power to the next generation, your mighty acts to all who are to come.” Psalm 71:18

There is much we can learn from our older generation. They need not be placed into “holding cells” or “old-people prison” or even “gilded cages.”  My mom said to my sister one time, something to the effect that, “It’s nice where I live, but it is still a prison.” And I really don’t want anyone to feel that way. Not ever. Life is to be lived joyously, peacefully, and with love, until our last breath. And ideally, surrounded by family and friends.

Tomorrow will be another busy day; the week will be full. And slowly but surely, we will be checking more things off our lists. The hubby can come home later in the week and not have to leave again for a couple of weeks; he can relax at home for awhile. I can start packing us up to move (*The thrill is gone…* I am channeling my inner BB King). My youngest son can get closer to graduation – it all wraps up in a couple of weeks! We can get in tune with this journey we are all on and the feelings we have, as we take these next steps; steps taken together as a family.

“But if serving the LORD seems undesirable to you, then choose for yourselves this day whom you will serve, whether the gods your ancestors served beyond the Euphrates, or the gods of the Amorites, in whose land you are living. But as for me and my household, we will serve the LORD.” Joshua 24:15