Shining moments and Alzheimer’s World….

 

Today I watched as my mom blanked out, again. “Alzheimer’s World” is a term I am coming to grips with. She calls commercials, “little movies.” She loves watching the news on OAN (One America News), because you get the entire world in one hour and then it repeats. She is shocked every time she watches some of the news, even though it is the 2nd or 3rd round today. She only drinks coffee in the morning (but then grabs a bowl of cereal when she sees us eating) and watches the news. Over and over. And as I showed her a cute kitten video while the news was cycling through, she just turned her head away with a blank look on her face, completely confused at what she had seen. It was kittens playing. It was not the news. She had entered “Alzheimer’s World” and our moment of clarity was gone.

I have come to realize, through reading some great material in a class I am taking online, that when someone has the attention span of 5 minutes, expecting more from them is a waste of energy and emotion. We went to breakfast on Sunday and she sat there, looking blank. She did enjoy watching her 5-year-old great-grandson color, but she did not interact too much. She forgot how to eat French Toast and when I offered to help her, she snapped at me. But I know it was because she realized she was confused. So I did more with less and spoke with my kids, allowing her to eat French Toast like regular toast. Watching movies or TV programs does not resonate – she cannot follow a storyline. She will watch golf or football, because she says sports is just what it is and you don’t have to figure it out. She does enjoy “The Chew” because I think they laugh a lot and are noisy. She loves Steve Harvey and especially loves “Family Feud,” so we laugh together at that. I enjoy those short moments of joy with her. But, those moments of understanding are spreading further and further apart, and it seems to be happening so much more quickly these days.

These are my mom’s hands, This is how she holds them. All day long. She fiddles with her fingers and if she is stressed out, they clang against each other. Her fingers were going nuts on Sunday, as the grandkids played in front of her. It was just too much stimulation. As she enters into Alzheimer’s World more and more, she loses her hold on those of us around her. Her connection gets more and more frayed. My mom is highly verbal. But it is just recitation that is on constant rewind and replay. She can fool some people, who think she is pretty good for having Alzheimer’s, but those of us close to her are in shock she lived alone until August. I still don’t know how she did it, other than tons of notes everywhere and rote repetition of each day. But I also know her clothes were not clean, and personal hygiene is hard for her. The fact that she can still use a mascara wand and eyebrow pencil, and her thin, tiny eyeliner brush, amazes me (I don’t even use them well!). But it takes 2+ hours to do make-up and sometimes she just gives up. There is usually liquid make up all over the bathroom and mascara and eyeliner everywhere when she walks out of it. Sometimes we do our nails, just to connect. I am learning to wear polish just to do something together with her. She loves painting her fingernails!

I saw a new decline yesterday. She could not eat spaghetti, calling it “dinner by the yard.” She complained she could not twirl that thing (her fork) to get the noodles onto it, nor could she manage to eat them. It made me sad (especially since she did not call it a fork). She got all snotty with her comments, but it was to cover her frustration. So I cut her food into little bites and she completed her meal, commenting on how good it was, completely forgetting her struggle with the fork. I am noticing more and more her inability to do common things, and my heart hurts for her. And one of her major strident things is to always match. She will not use a black purse with a tan outfit; she will not wear black trouser socks with any color of pant other than black. Thanks be to God I had tan trouser socks one day recently (they are now hers) because just changing her sock color changed our entire process and her mood became joyous…just because her socks matched. It’s another way of doing more with less. (I’ll talk about that below). Changing sock color allowed us to process leaving the house with happiness instead of anger. Win-win.

So how do we do this every day? For one thing, I am learning, sometimes with a seeming 2×4 up the side of my head, to do more with less. Less communication and less worry. If we have 1-2 moments in her 5 minute attention span, I have a little success. So our days are down to 5-minute spans. And we can move on. The kids got a big hail storm last night and “face-timed” us on their phone. So I walked outside to see if we had the hail. Mom saw them on the phone and followed me. She wanted to close the door. I explained I was looking at the rain to see if we got hail, just like the kids were getting on the phone. She had no idea we had just been on the phone with the kids, seeing the hail, and wanted to close the door. Doing more with less, I continued to watch the rain and chat with the kids, as she closed the door on me and went to sit back down on the couch.

Doing more with less means taking just a small thing and learning that it is the crowning moment of your day, and not worrying about the entire day. Each day is made of moments. It’s the moments we have to focus on, and cling to the good ones, allowing the others to fade away. So today, I will watch her go to Alzheimer’s World and not worry about those moments. I will cling, however, to those moments when she looks at me and I know she really sees me and is connected to me.

I used to read – a lot. But not much anymore. Nine o-clock rolls around at night and I can barely stand up. I have reached the end of my rope, and I am exhausted. I walk around, doing stupid things like taking vitamins and giving the cat her water, making sure mom is getting ready for bed, checking for locked doors, getting the dog settled and myself ready for sleep. Read a book at that point? I can barely make it under the covers.Hubby and I chat a little, and ironically it is me who goes right to sleep; a few months ago I kept him awake while I read late into the night. Yesterday morning I realized how tired I was (and overwhelmed by taking care of everyone else and forgetting time for me) when I arrived at the restaurant, to meet our kids for breakfast on a crazy Sunday morning, wearing my slippers. Yeah. It is like that every day. But there are those shining moments. Those I will cling to.

 

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“…like a weaned child, I am content.”

Things change. And change is almost always difficult. And learning is sometimes rough, as well. But when you get to the other side, there can be joy. Growth is amazing. And change can bring new light to your life.

“The light shines in the darkness, and the darkness has not overcome it.”       John 1:5

Our journey has been tough (and it is far from over or settled) but I brought some of the practices of my faith into dealing with this horrific disease, Alzheimer’s. And they seem to work for bringing centering and peace, even when faith is not the ultimate object or goal. Silence and a quiet environment, and a steady environment, has made so much of a positive difference. Just like silence is where we seek the wisdom of God in our lives, it can sometimes completely center us in all our life’s aspects.

I was being fed stories about how busy people are, etc. from several people I trusted. But what I found, in reality, was the busy-ness was to avoid much of life. When someone has Alzheimer’s, their ability to participate in life is greatly diminished. They think they are participating, but they are truly observing. Moving about and going from event to event gives them a sense of involvement, but it is just keeping them busy. As I researched the schedule at the senior complex where my mom used to live, there was something every hour, all day long. So when my mom came to live in our home, she complained, and was angry, about being bored. Nothing to do. Nowhere to go. To entertainment to be had. She forgot how to entertain, and busy, herself. It was all about playing Wii bowling. About going to this event or that event. After days of explosions and anger, I just decided enough was enough. We stopped. We stayed home. We stayed quiet.

“My heart is not proud, Lordmy eyes are not haughty; I do not concern myself with great matters or things too wonderful for me. But I have calmed and quieted myself, I am like a weaned child with its mother; like a weaned child I am content.” Psalm 131:1-2

One of the things I am learning (through this Alzheimer’s class I am taking online) is that as a caregiver, it is my goal and my purpose to bring peace and contentment to my mom. And lately, contentment has been so apparent. And it is wonderful to see. Wonderful to be around. And it came through stopping this “busy-ness” and allowing a calm to take over. And there has been an emergence of peace, gentleness, and far less confusion. And so much more apparent, there is genuine love. That has not, yet, been forgotten.

Alzheimer’s is fatal. As one of our teachers said, “Life is fatal.” It is. We all die. But most of us pass away with ourselves intact. Alzheimer’s destroys the brain, bit by bit, And each day that passes, more is irrevocably lost. The patient becomes disintegrated, mentally, and is no longer rationally intact. It makes each day unique unto itself. Because not only is each day unique, due of the progression of this horrific disease, each moment is unique. What works at 9am may be totally wrong at 10am. And so it is a tight-rope walk each day. But the explosions and the confusion, and the underlying agitation, those are less and less. Her memories of what she used to do and where she used to live, the people she hung out with, those are fading. She is even using incorrect terms when referring to them. And she is not less because of it, nor is she missing it, nor is she angry about moving. She adores her bed and her room. Each night, she sighs and comments on how much she loves that bed! It has become a source of joy for me. We have had frank discussions about her end-of-life choices and have had some incredibly peaceful discussions about how she wants to die. It melted my heart. We communicated well and we found commonality and peace with her choices. I cling to those moments.

Patients with Alzheimer’s are aching. Because their world is contracting and they find it harder and harder to connect with people each and every day. They get frustrated and so very confused. And taking care of them infects the lives of their caregivers. There are days when I feel like I adopted a 3-year-old. And there are days when I just want to go back to bed. I have stacks of paperwork I am trying to get through, but will someday have to tackle. And I am cooking and cleaning and doing laundry for 4 now. I am learning how to work with someone who doesn’t fully understand the moment and it is good, stretching “muscles” I did not know I had not used in awhile. Caregivers find they are tugged, stretched, and pulled in ways they did not know they could survive, let alone thrive. I am far more tired these days, but I am not wasting many of them! I am too busy!

The joy I see each night, and the hugs I get every evening, complete with profuse thanks for all we are doing for her, well, that pretty much makes it all worthwhile. I haven’t got this cornered and I truly don’t have all the answers, but I do know God is blessing our lives. He is helping keep me quiet and centered. And I enjoy feeling the peace seep into in our quiet mornings, and the contentment I feel in our warm, slow, and quiet evenings. I fall into bed, exhausted each night. Tonight is no different. Tomorrow will be a new day in almost every way. But I will greet the day with hot coffee, and with gratitude for this incredible journey…

 

“Sufficient unto the day is the evil thereof.”

So, I did it again. LOL. I got another tattoo. At my age, with my grandma, crepe-y skin. It hurt. And it bled more than my other one. This one has colors. LOL. But it is still small. It’s on my wrist, just like my other one. I’m a tatted-up grandma. Cracks me up, just to say it, let alone be it!! LOL!  I find it so interesting how people look at you when they see tattoos. I know, because I was like that, too. Immediately judging a book by its very colorful cover. It is such a shallow view of life. Truly, it is. I had one of the best conversations on God, the Crusades, and modern faith with the man who tattooed my first one, a year ago. How people choose to decorate themselves is up to them. Some have different colors of hair, or hairstyles, each time I see them. There are those who pierce themselves (which just looks painful to me!!). Others have long, fake, fingernails in a variety of shades. Women wear all sorts of make-up. Then there is jewelry and clothing, the car you drive, the house you live in, the job you have, the church you go to. It is all adornment of some sort or another. Look at Matthew 6: 25-24 below:

Therefore I say unto you, Be not anxious for your life, what ye shall eat, or what ye shall drink; nor yet for your body, what ye shall put on. Is not the life more than the food, and the body than the raiment? Behold the birds of the heaven, that they sow not, neither do they reap, nor gather into barns; and your heavenly Father feedeth them. Are not ye of much more value than they? And which of you by being anxious can add one cubit unto [a]the measure of his life?  And why are ye anxious concerning raiment? Consider the lilies of the field, how they grow; they toil not, neither do they spin:  yet I say unto you, that even Solomon in all his glory was not arrayed like one of these. But if God doth so clothe the grass of the field, which to-day is, and to-morrow is cast into the oven, shall he not much more clothe you, O ye of little faith?  Be not therefore anxious, saying, What shall we eat? or, What shall we drink? or, Wherewithal shall we be clothed?  For after all these things do the Gentiles seek; for your heavenly Father knoweth that ye have need of all these things.  But seek ye first his kingdom, and his righteousness; and all these things shall be added unto you.  Be not therefore anxious for the morrow: for the morrow will be anxious for itself. Sufficient unto the day is the evil thereof.”

The Lord cautions us not to worry about our clothing (or any adornment) or the food on our tables, but rather, be concerned, firstly, about His kingdom and His righteousness. And don’t worry about “the morrow,” because today has all its own evils. My tattoo is an “omage”, if you will, to my family. I got a “Forget-Me-Not” flower surrounded by 4 hearts and a little swirling going on, all the size of about a quarter. The Forget-Me-Not is the state flower of Alaska. It is also the flower for Alzheimer’s and Dementia. Both of my parents suffer from them. Our nuclear family consisted of mom and dad, my brother and me. So I got the 4 hearts for us. As my brother and I were chatting the other day, he said when he and I start going dementia on our families, and people comment on it, we can say, “It’s just normal in our family.” And we laughed. As I got tattooed yesterday, I died a little bit inside. Because that is the truth of it. We are losing our parents and more than likely, our families will lose us, too.

As I woke up this morning and saw this tattoo – after removing the bandage I wore all night – I noticed all the blue. LOL. I am not really a blue person. I tend more to greens and reds, and lately, purple. The swirling and hearts are purple. But wow, that is a lot of blue. There is even yellow in the center. LOL. Yellow. Yeah; not my color. And as I thought about seeing it all the time, I realized that it may make me uncomfortable, but Alzheimer’s and Dementia are not comfortable, at all. When my oldest son got a tattoo of the “crown of thorns” around his bicep, I cringed. It was ugly. His comment to me was, “Well, Mom, the crown of thorns was ugly. It is supposed to be ugly. If Jesus could wear it on His head and live through it, I can wear it on my bicep and remember that sacrifice.” Now, he wants to morph it into some sort of Celtic thing with his Spartan helmet for his unit in the Army. He sacrificed much for our country and he will be incorporating that crown of thorns into it. I get that. But when I first saw that gorgeous young man of mine with an inked arm, I actually cried. Because I had grown that baby in my womb and the Lord and I labored over making the perfect skin…and he inked it. LOL. I was not a happy mama! And now I have one more tattoo than he does! He was having a ball, giving me alleluia for getting a second one last night! The stinker.

We memorialize things in this world, to remind us of important events and feelings. The Islamists get this and they regularly destroy statues and memorials to history, because they want to erase it from our memories. “Out of sight, out of mind.” People in the South are tearing down memorials to the Confederacy. It seems stupid to me. The Confederacy is alive and well in all its descendants, as is all of our shared Christian history. Tearing down a memorial won’t erase those memories. For me, I have tattoos to remind me; to give me comfort. They are not for anyone else. They may assault the senses of others; they may cause others to look at me differently or perceive who I am differently…that is okay. If my new ink bothers you and you cannot see past it to see me, I am sorry. Perhaps we were not meant to be close friends, after all.

And I wept, thinking about how my parents will be forgotten themselves, as they, too, forget. Neither of them wants a gravesite. Neither wants any sort of memorial service, either. Both asked to be cremated. My dad is donating his body to a medical school in Texas and when they are done with it, they return the cremated remains to the family; my mom is donating her brain to the Alzheimer’s Association and once they remove it they will cremate the rest and return it to her family (me). So I will have no memorial to visit for my parents. And if I somehow am lucky enough to be gifted with Alzheimers and/or dementia, when my family sees my tattoos on my wrist, I hope they will remember the struggles my parents had, and I had with them, and be gentle and kind to me. That they will see my tattoo of the Cross of Jerusalem and remember how fervently I loved God and fought for my faith – to keep it and witness it to them. My personal “Crusade,” fought and lost and won, for them and for me. That when they see this little flower all wrinkled upon my body, they will recall I waited until I was 61 years old to get it, and that I got it for my parents and for them, too. So none of us will forget each other, as we wade into the uncertain future.

“…on the path unwinding…”

The world is spinning and we are all hanging on, while it tumbles in space. And every once in awhile, it seems like there is a “hitch in the get along” and things go askew. We all have those days where we want to just crawl back into bed and hit the rewind button. I had several of those days recently. Thankfully, not back-to-back, or I would be nutsy….certifiable.

 Bear one another’s burdens, and so fulfill the law of Christ.” Galatians 6:2

I was talking with my hubby, who has also been very stressed out lately, and I told him that if he continues to carry everyone’s burdens on his shoulders, he will be crushed with the weight of it. He said he knew that, but then asked me, “How do you stop caring?” And he is right. We both tend to worry too much about things and people and situations we really don’t control. We take on the burdens of others because it is just part of our nature. And sometimes it can weigh you down. A lot. And those are the days we want to stay in bed, hiding under the blankets, and just not deal with it.

As we age, we forget everyone else is aging, too. Sometimes it hits you when a friend’s kid all of a sudden is older and doing adult things, and you still think of them as a little child. Those years when my kids were young seemed to drag, but as they hit high school, life began to race by us. And somehow I related to my parents and other family members the same way – I forgot that as we aged, they aged, too. After speaking with my mom this morning, I was relating how my youngest son’s girlfriend’s grandma is my age. Ha-Ha. And my mom said she remembers turning my age 20+ years ago. And I stopped and realized she is 87 years old. I remember my great-grandma being 87. I remember my great-grandpa, at 90, saying he was just flat-out tired and dying a few days later. My dad (his grandson) is pushing 91 years old. My dad has Parkinson’s dementia, Alzheimer’s, and a host of other ailments. My step-sister (stepmom’s daughter) and I had a two hour discussion about our parents (they have been married more than 35 years now) and how their aging is not going well. I remember babysitting her when she was in junior high school. People thought her younger sister was my daughter. And now we are discussing our parents’ death wishes and we realized they probably won’t last the year. When did all this happen? When did she become a grandma, too?? I am used to the fact that I am older, but when did everyone else get older?

“Listen to your father; without him you would not exist. When your mother is old, show her your appreciation.” Proverbs 23:22

And we are trying to listen to our parents. We are trying to appreciate them and honor them. Dementia and Alzheimer’s make caring for them so very difficult. And it makes these last days we share with them very stressful. I kept thinking my parents would always be there. But they will not be. “None of us is guaranteed our next breath” (Thank you, Abouna Justin, for the quote). We all should be prepared to “meet our maker.” I’m not sure what state my parents’ faith is in, but that is not my business. I will share with them as I able to, from the place in which I find myself spiritually, and try to meet them where they are. However, what I am tasked with in the immediate future is respecting my parents for who they are and what they have done for me in my life, and ensuring their comfort as they experience the end of their days. I want them to know they are loved and appreciated. I want to keep them fed and warm and comfortable, and occasionally share a laugh together.

And I am doing this while still parenting a teenager; while being a grandma to 5 gorgeous grand babies, and still trying to enjoy the move to a new home. In a few days, my sister-in-law will arrive in their motorhome with 9 of their 10 children. I am looking forward to it so very much. But at the same time, I realized this is my last free Saturday. Because after this, I will have company at my home, and then I will be flying to get my mom and moving her in with me. My life is going to completely change. So is hers.

But I want to embrace it all with joy and hope and a love of God, sharing that love with others. Some days I know I will want to crawl back into bed and hide. But I won’t be allowed to do that. I will be guiding my teen towards adulthood, my grandchildren into childhood, and my mom and dad to “meeting their maker.” And in my head, I keep singing that Disney song from the Lion King….

Circle Of Life
From the day we arrive on the planet
And blinking, step into the Sun
There’s more to be seen than can ever be seen
More to do than can ever be done
Some say eat or be eaten
Some say live and let live
But all are agreed as they join the stampede
You should never take more than you give
In the circle of life
It’s the wheel of fortune
It’s the leap of faith
It’s the band of hope
Till we find our place
On the path unwinding
In the circle, the circle of life
Some of us fall by the wayside
And some of us soar to the stars
And some of us sail through our troubles
And some have to live with the scars
There’s far too much to take in here
More to find than can ever be found
But the Sun rolling high through the sapphire sky
Keeps great and small on the endless round
In the circle of life
It’s the wheel of fortune
It’s the leap of faith
It’s the band of hope
Till we find our place
On the path unwinding
In the circle, the circle of life
It’s the wheel of fortune
It’s the leap of faith
It’s the band of hope
Till we find our place
On the path unwinding
In the circle, the circle of life
On the path unwinding
In the circle, the circle of life.
And we are all spiraling along on our own circle of life. Things happen, days pass, the world keeps spinning on its axis. As each day morphs into night and we face another day spent, I hope we reflect on how we have moved through our own circle of life that day. How we have embraced these responsibilities we have been given, and how we celebrate all the joys we have experienced. Life is a blessing. Life is to be cherished. Each day of it. As I was struggling with anger towards my husband recently (cleaning out a garage is NEVER fun) I kept telling myself how grateful I was for our many blessings, and how incredibly blessed we were to have all this stuff we needed to deal with and put into its proper setting and place. The opposite – being homeless and having nothing – would indeed be frightening. And as I have learned through keeping a gratitude journal, there is something in every day and in every thing to be grateful for. Truly. So, I am grateful for this latest spin on the circle of my life. My Lord is with me every step of this life. I am grateful and I am blessed.

“Then the King will say to those on his right…”

So, it’s getting real. I am making travel plans and arrangements for rental cars and return flights and packing boxes and getting medical care…my mom is actually moving in with us. For sure. The end of August. My mom has Alzheimer’s and dementia. It’s a mixed bag of symptoms and I would say she is not your average Alzheimer’s patient. If you did not know she had it, you would not think she had it. Unless you chat with her for more than 10 minutes, and then you will know. She takes great care with her appearance and pays attention to fashion. She always wears make up and matching jewelry. My mom does not look 87 years old. She’s a tiny woman, at barely 4’10”, but she is an amazingly strong woman. She left everything she knew and was familiar with, and as an only child, left New Zealand to come to America to follow my dad’s dream. She made a life here, for herself. She loves America and her family. She would do whatever it takes for any of us, who are lucky enough to have her love and devotion. And now she needs our help.

Why do I have this pit in the center of my stomach??? My son said, “Grandma won’t take over the family here; she’ll just be another one of the kids.” Boy, I sure hope so. We are all a little nervous about the impact of having her here. I haven’t lived with her since before I was married. I have been married 33 years this year and with my husband for over 35 years. So, its been awhile since she and I were roomies. And trust me, the moment I turned 18, I moved out! I was back and forth over college a few times, but since my 20s I have not lived with my mom. This is going to be a huge adjustment. But I also know this is what is right and what will be the best for us all. I trust God and His plan for us.

And when this pit develops in my stomach, I continually think back to these words from the Book of Matthew, Chapter 25, verses 30-45:

“When the Son of Man comes in his glory, and all the angels with him, he will sit on his glorious throne. All the nations will be gathered before him, and he will separate the people one from another as a shepherd separates the sheep from the goats. He will put the sheep on his right and the goats on his left.

 “Then the King will say to those on his right, ‘Come, you who are blessed by my Father; take your inheritance, the kingdom prepared for you since the creation of the world. For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, I needed clothes and you clothed me, I was sick and you looked after me, I was in prison and you came to visit me.’

 “Then the righteous will answer him, ‘Lord, when did we see you hungry and feed you, or thirsty and give you something to drink?  When did we see you a stranger and invite you in, or needing clothes and clothe you? When did we see you sick or in prison and go to visit you?’

 “The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’

 “Then he will say to those on his left, ‘Depart from me, you who are cursed, into the eternal fire prepared for the devil and his angels.  For I was hungry and you gave me nothing to eat, I was thirsty and you gave me nothing to drink,  I was a stranger and you did not invite me in, I needed clothes and you did not clothe me, I was sick and in prison and you did not look after me.’

 “They also will answer, ‘Lord, when did we see you hungry or thirsty or a stranger or needing clothes or sick or in prison, and did not help you?’

 “He will reply, ‘Truly I tell you, whatever you did not do for one of the least of these, you did not do for me.’

In the old days, families lived together in multiple generations, with grandma and grandpa around all the time. We now opt to warehouse our senior population. But we need to concern ourselves with the fact that more and more people are going to need our help as they age. Watching a recent “TED Talk” I learned that the statistics show that more than 70 million people will have Alzheimer’s in the coming decade. Do you realize how many people that is??? There are 210 countries in the world with less than 70 million people. Karachi, Pakistan is the most populated city with 14.5 million, followed by Shangai and then Mumbai, India. The three together do not equal 70 million. New York only has 8 million, and Los Angeles just over 3 million. I don’t think we are prepared for 70 million people to have Alzheimer’s. And when there are 70 million people with Alzheimer’s, I fear for their very lives. Because the culture of death is all around us. There have been more than 22 million abortions worldwide so far this year (according to the site, NumberofAbortions.com).

22 Million abortions in 2017 – so far. Staggers the mind. 70 Million with Alzheimer’s in the next decade. Hard to fathom. And I am preparing to care for just one life. One life. I think it is the least I can do.

“The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’”

 

 

The pain of memories…

So some days there are moments when your head just explodes. Sometimes it is a result of not enough caffeine (rare in my house) or not enough sleep (becoming the norm), and sometimes it is fall-out from interacting with others. For me, it has been a combination of moving (the physicality of it all, in addition to the emotional stress of relocating) and of trying to restore order and normalcy to our life habits, in addition to the preparation for my mom to come and live with us. So much change!!

My true pain came from a FaceTime session with my ailing mom. I realized how much this stupid disease is stealing from us all. She had no idea who my grandchildren were, nor did she truly understand what she was seeing. I took her on a tour of our new home, and showed her the room she would be living in, as well as her bathroom. Her comment was, “Well, at least I don’t have to go outside in the snow to go pee.” And we chuckled at it. (She has some odd, but common, misconceptions about life in the “Last Frontier”).  And then, as I walked from the bathroom, around a corner, to the living room, she asked me, “Are you ever going to move to a bigger house?” She was back to the house we just moved from, in her mind. It took about 3 minutes. And when my sister and I reminded her that she could not stay where she is, she said, “I’m not leaving here until I die.” And she was adamant about it. My sister and I exchanged looks, knowing this will be such a hard transition for her – for all of us, really.

But what prepares us for this process? Not much, really. I have not taken a course on caring for aging parents (I probably should look into that). I know my mom will probably become a toddler again, in some ways. It hurts my heart for her and her dignity. And dreams we all had of growing old and sharing our children and grandchildren. I am hoping that being around my grandchildren will energize her (or wear her out! Ha-Ha!).

And I am confused, as well, by all this information I keep seeing about why the preponderance of dementia and Alzheimer’s disease is so rampant in the USA – some link it to our diets, some to our sedentary life style, or processed foods, or the mercury in all those old vaccinations we were forced to get in the 40s and 50s and 60s. There are now so many dementia patients who are only in the their 40s! And it is not in Europe or elsewhere as pronounced as it is in America. I question standard medical practice and embrace much that is considered alternative. Why? Well, I grew up around medicine and I know they play at it. I have seen doctors create solutions on the fly, going against normal procedures on a whim, and having it work out better than what they would have achieved, had they not been creative. I have seen chemical mistakes turn into cures. My brother broke his hand – crushed his fingers – on a Saturday afternoon when he was, I believe, 14 or 15. He was one of the star running backs at our high school. Did my dad rush him to the local ER? No. He drove him about an hour away, after having called his friends (no cell phones in those days) who met him at the hospital where they all had faculties, and they experimented and came up with a casting system (it was replaced several times during the season) that would allow him to pass the referee’s requirements thereby keeping the season intact. Did my parents pay for that? They did not. Did my brother get excellent medical attention? You bet he did. But medicine and research of his incident was used as the payment. He was their guinea pig. My point? Science can be flexible. There are thousands of stories of doctors and staff using their families as guinea pigs. So I know there is stuff going on out there, for this horrid disease. I also KNOW that big pharma has a hand in all of this. Why cure Alzheimer’s and dementia when there is money to be made off the victims? Why cure many of these horrible diseases when healthy patients don’t need to see their doctor or take their medications as often or as long? When did medicine become pharmacy instead of prevention?? When did dietary and exercise advice become a prescription or a surgical procedure? When did doctors stop treating the person and just focus on the symptom?? It makes my head spin.

After my frustrating FaceTime with my mom, with my head exploding, I laid down on my bed. I diffused lavender essential oil on my dresser. I cuddled with my cat. I cried for my mom. I cried for my kids and grandchildren, too. I have a parent with Alzheimer’s, which means it is more likely I may get it, too. My dad has Parkinson’s Dementia. (I am not sure about my possibility for Parkinson’s, but it is out there). But it seems like the medication he is taking keeps him more with us than when he was first diagnosed. (Shocking result, to be honest. I seriously doubt our pharmaceutical world). He is having more Parkinson’s symptoms and less of the dementia, although he had to stop driving. He has a hard time even walking some days. His speech today was slurred, but as we spoke longer, his voice got steadier and we had a great conversation. I cried. I know my parents are leaving me. And I realized how lonely that can leave you, even with a spouse, children, and siblings left behind with you. And I cried for my future. How long do I have with my husband and children, and grandchildren? Moving exhausts you; it truly does. I am pretty spent. And the future is just so cloudy, surrounded by lots of tears.

I will rise up. I know I will. My exhaustion brings on melancholy and thinking. Ha-Ha. Maybe I just need that cup of tea and a break! I know my world will continue through my sons, daughters-in-law, and grandchildren. And I know I have lots of time to spend with them, making memories for them to hold after I am gone. Right now, I am still facing a garage full of boxes. Many of them contain my memories. So I will bask in those wonderful memories, as well as embrace what is before me. I will also prepare for my future. My hubby and I realize we need to return to our Whole30 eating regime and add back in some supplements for our future health. We need to stop being lazy in food and meal prep, as well as getting ourselves healthier. Mindwise is back on the menu for me!

I still may have to escape to the mountains for some much needed respite. And believe me, I know that sounds funny, coming from someone who lives in Alaska, in a town of just 8,845 people! But the mountains do call to you! Almost as much as all this green growing all around me gives me peace, the mountains give me stability. I know I am tired. And I know I am blessed. I also know summer is coming. The sun will help. So does God. 

 

 

“I am a sojourner…”

It was a loo-oo-oo-ng weekend. Hubby flew out of state to see his mom in the middle of the week, and I was here, trying to motivate our youngest, who is suffering with an extreme case of senioritis, and I was doing that among a myriad of other goings-on. And in the middle of all my personal chaos, I was blessed to have lunch with a newly-made friend. I really enjoy her company. We went to this restaurant that has been around forever. It is decorated in typical-tourist-Alaska style with rocks and bears and mining tools. But it is just such a fun place to hang around. The servers are genuine people. The menu is simple fare and I had the best BLT I have had in ages. It was a double-decker and the fries were to die for. They even left us an entire pot of coffee! What more could two gabbing women ask for?? Ha-Ha! And we were there for 3 and a half, gloriously uninterrupted, hours on a Saturday afternoon. We gabbed, we shared, we laughed; I really enjoyed myself. Oh, and we ate, too! LOL!

The hubby dragged himself in late this afternoon, after the airlines lost his luggage, and then found it again, and after he stopped at the auto supply store to get oil…and then he put oil in our son’s car…he was so tired. And tomorrow at some ungodly hour, which I will be sleeping through, he jets off again for a week of work away from home. With no respite in-between. We knew he’d be squeezing in his visit to his mom, but did not realize how tired he would be.

We are on the precipice of great change in our lives. Our parents are aging and are all at points where their health is not good – at all. We are making huge changes and altering many lives in just a few weeks. And helping to support family members facing their own issues. It seems like we are just waiting for the first domino to fall…and then the rest will follow suit.

We bought a house. Which my middle son told me was the first thing on our list. I guess it is a list. I had not thought of it that way. I read an article today about making lists in our lives to encourage our growth in faith. We need to add things to do, to make time to do all the important things. Things like praying. And reading Scripture. And actually going to church. We are all in different places in our journey to our forevers. My steps are just that – my steps. You may be leaps and bounds ahead of where I would like to be, or perhaps I can turn back and see you, trudging along behind me, making your way.

“I am a sojourner in the land; do not hide your commandments from me.”    Psalm 119:19 

This quote from Psalms stuck with me because I think it describes what we are going through. It is like we are all moving towards that goal – eternity – and many of us are much closer than others. Many of us have taken direct routes, while others of us have a very convoluted journey. Our family is a mixed bag of believers, non-believers; those who practice their faith and those who tolerate faith in their lives. And as a family, it feels like we are making decisions and checking things off our lists, making the pathway a little clearer. And I think that for the first time in my life, I am feeling the journey.

We wake to that alarm, we drink our coffee, we head out into the world. It is the daily grind. We get into traffic and make our way along. But every so often, something happens that makes you draw a quick breath and stop. And in that pause, you can feel the movement, the journey, right beneath your feet. Or within the pumping of the blood through your veins. Or in each breath you subsequently draw in. And in that next moment, the world is different. We sense it; we know it; but some of us refuse to recognize it in any real, and tangible, way. And when people refuse to acknowledge these pivotal moments, they react in sometimes odd ways.

Quite often, when we sense change coming, we react in anger, directed towards where all that movement is coming from. Sometimes people lash out at those they love, because they fear the changes, the movement, the momentum towards whatever it is they sense is coming.

And when we are dealing with our aging family members who are suffering disease, and all the effects on their bodies, minds, and souls, we can witness moments of lashing out and anger, which is brought on, I believe, through frustration. We have all seen images of little old ladies sitting around tables looking ready for a date, and none of them are speaking – they are staring off into their minds and their pasts. And sometimes you see others in nursing homes or in hospitals, who are yelling and angry at the world. We all react differently to changes in our world, our lives, our bodies, and our minds. It is part of our journey. We bought a house, to bring my mom home with us for the last section of her journey. And we’re all a little agitated. It has been over 40 years since my mom and I lived under the same roof. The hubby and son have claimed part of the 3rd garage as their “space.” Do not blame them, at all. And mom, due to her aging and suffering with Alzheimer’s, doesn’t do change well.

Tonight, as I sat in Church, I prayed for my entire family. My blood family, and my extended family. We fondly refer to extended family members as the “married-ins.” Ha-Ha. I am a “married in” to my husband’s large family, as he is to my much smaller, but fractured family. And I prayed for my friends. My long time friends, and my new friends. I prayed for my sons and their families, and my youngest son (the senior-itis boy!!) as he comes to the close of his high school experience and embarks on his career. Because this journey we are all on, well, we come together once in awhile and we share the road together. And sometimes we need to rely on family and friends to help us navigate this path we are on. It’s when we lean on each other.  And so I prayed for us all.

“Do not cast me away when I am old; do not forsake me when my strength is gone.” Psalm 71:9

“Even when I am old and gray, do not forsake me, my God, till I declare your power to the next generation, your mighty acts to all who are to come.” Psalm 71:18

There is much we can learn from our older generation. They need not be placed into “holding cells” or “old-people prison” or even “gilded cages.”  My mom said to my sister one time, something to the effect that, “It’s nice where I live, but it is still a prison.” And I really don’t want anyone to feel that way. Not ever. Life is to be lived joyously, peacefully, and with love, until our last breath. And ideally, surrounded by family and friends.

Tomorrow will be another busy day; the week will be full. And slowly but surely, we will be checking more things off our lists. The hubby can come home later in the week and not have to leave again for a couple of weeks; he can relax at home for awhile. I can start packing us up to move (*The thrill is gone…* I am channeling my inner BB King). My youngest son can get closer to graduation – it all wraps up in a couple of weeks! We can get in tune with this journey we are all on and the feelings we have, as we take these next steps; steps taken together as a family.

“But if serving the LORD seems undesirable to you, then choose for yourselves this day whom you will serve, whether the gods your ancestors served beyond the Euphrates, or the gods of the Amorites, in whose land you are living. But as for me and my household, we will serve the LORD.” Joshua 24:15