“…like a weaned child, I am content.”

Things change. And change is almost always difficult. And learning is sometimes rough, as well. But when you get to the other side, there can be joy. Growth is amazing. And change can bring new light to your life.

“The light shines in the darkness, and the darkness has not overcome it.”       John 1:5

Our journey has been tough (and it is far from over or settled) but I brought some of the practices of my faith into dealing with this horrific disease, Alzheimer’s. And they seem to work for bringing centering and peace, even when faith is not the ultimate object or goal. Silence and a quiet environment, and a steady environment, has made so much of a positive difference. Just like silence is where we seek the wisdom of God in our lives, it can sometimes completely center us in all our life’s aspects.

I was being fed stories about how busy people are, etc. from several people I trusted. But what I found, in reality, was the busy-ness was to avoid much of life. When someone has Alzheimer’s, their ability to participate in life is greatly diminished. They think they are participating, but they are truly observing. Moving about and going from event to event gives them a sense of involvement, but it is just keeping them busy. As I researched the schedule at the senior complex where my mom used to live, there was something every hour, all day long. So when my mom came to live in our home, she complained, and was angry, about being bored. Nothing to do. Nowhere to go. To entertainment to be had. She forgot how to entertain, and busy, herself. It was all about playing Wii bowling. About going to this event or that event. After days of explosions and anger, I just decided enough was enough. We stopped. We stayed home. We stayed quiet.

“My heart is not proud, Lordmy eyes are not haughty; I do not concern myself with great matters or things too wonderful for me. But I have calmed and quieted myself, I am like a weaned child with its mother; like a weaned child I am content.” Psalm 131:1-2

One of the things I am learning (through this Alzheimer’s class I am taking online) is that as a caregiver, it is my goal and my purpose to bring peace and contentment to my mom. And lately, contentment has been so apparent. And it is wonderful to see. Wonderful to be around. And it came through stopping this “busy-ness” and allowing a calm to take over. And there has been an emergence of peace, gentleness, and far less confusion. And so much more apparent, there is genuine love. That has not, yet, been forgotten.

Alzheimer’s is fatal. As one of our teachers said, “Life is fatal.” It is. We all die. But most of us pass away with ourselves intact. Alzheimer’s destroys the brain, bit by bit, And each day that passes, more is irrevocably lost. The patient becomes disintegrated, mentally, and is no longer rationally intact. It makes each day unique unto itself. Because not only is each day unique, due of the progression of this horrific disease, each moment is unique. What works at 9am may be totally wrong at 10am. And so it is a tight-rope walk each day. But the explosions and the confusion, and the underlying agitation, those are less and less. Her memories of what she used to do and where she used to live, the people she hung out with, those are fading. She is even using incorrect terms when referring to them. And she is not less because of it, nor is she missing it, nor is she angry about moving. She adores her bed and her room. Each night, she sighs and comments on how much she loves that bed! It has become a source of joy for me. We have had frank discussions about her end-of-life choices and have had some incredibly peaceful discussions about how she wants to die. It melted my heart. We communicated well and we found commonality and peace with her choices. I cling to those moments.

Patients with Alzheimer’s are aching. Because their world is contracting and they find it harder and harder to connect with people each and every day. They get frustrated and so very confused. And taking care of them infects the lives of their caregivers. There are days when I feel like I adopted a 3-year-old. And there are days when I just want to go back to bed. I have stacks of paperwork I am trying to get through, but will someday have to tackle. And I am cooking and cleaning and doing laundry for 4 now. I am learning how to work with someone who doesn’t fully understand the moment and it is good, stretching “muscles” I did not know I had not used in awhile. Caregivers find they are tugged, stretched, and pulled in ways they did not know they could survive, let alone thrive. I am far more tired these days, but I am not wasting many of them! I am too busy!

The joy I see each night, and the hugs I get every evening, complete with profuse thanks for all we are doing for her, well, that pretty much makes it all worthwhile. I haven’t got this cornered and I truly don’t have all the answers, but I do know God is blessing our lives. He is helping keep me quiet and centered. And I enjoy feeling the peace seep into in our quiet mornings, and the contentment I feel in our warm, slow, and quiet evenings. I fall into bed, exhausted each night. Tonight is no different. Tomorrow will be a new day in almost every way. But I will greet the day with hot coffee, and with gratitude for this incredible journey…

 

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“…children are a heritage from the Lord…”

Children are a heritage from the LORD, offspring a reward from him.  Like arrows in the hands of a warrior are children born in one’s youth. Blessed is the man whose quiver is full of them. They will not be put to shame when they contend with their opponents in court. Psalm 127:3-5

Family can mean so many, many different things. Some of us, me for example, have very small families. My parents immigrated to the USA. Both of them are only children. So I have no aunts, uncles, or cousins. And I have just 1 brother. Any other relatives I have are living in other countries. My paternal grandparents came to the USA, because they did not want to be away from their only son. So for me, 6 people at the table was big. I married into a large family. My father-in-law was the eldest of 10 siblings. My mother-in-law is the eldest of 3 siblings. They are all “Germans from Russia” or “Volga Russians” and they all married within their culture. Until me. Our wedding  was filled with literally hundreds of people I did not know, and may have only seen that one time.

When we got married, we wanted a large family. We decided on 6 kids. Well, biology and God chose to make that number 2 and then we adopted, which brought us to 3 boys. My oldest son has two kids (although I think they may be thinking more might be fun) and our middle son has three girls (and we think there will be more!!). Our youngest is not married yet, so we will see on him. My sister-in-law, however, decided to keep up with her paternal grandmother (Grandma Kaiser) and is the mother of 10 children. They are vacationing with us with 9 of their 10. It has been so exhausting but has brought so much joy and laughter. I will miss them terribly when they leave. And when they leave, I leave for 10 days! LOL! Our lives are insanely crazy right now, but as my head hits the pillow each night I am so grateful for these many moments with family.

When you live so far apart, relationships have to be re-established and sometimes there can be mis-communication and missed opportunities for healthy communication. It is a tightrope and/or a tap dance. But if you work at it, you can enjoy such a wonderfully full life.

Her children rise up and call her blessed;
her husband also, and he praises her:
“Many women have done excellently,
but you surpass them all.”
Charm is deceitful, and beauty is vain,
but a woman who fears the Lord is to be praised.
Give her the fruit of her hands,
and let her works praise her in the gates. (Proverbs 31: 28-31)

The crown of marriage (quite literally in Byzantine/Orthodox weddings) is our families. Some of us have to adopt to have a family; some of us have friends who become our families. However you gain a family, it is what we pivot our lives around.

In the fear of the Lord one has strong confidence,
and his children will have a refuge. (Proverbs 14:26)

I truly feel that when we surround ourselves with the love of God and instill this love in our families, we are doubly blessed. But oftentimes we worship differently and this causes issues, too. In order to keep the peace we sometimes have to be silent. And being a silent witness to your beliefs can challenge even the greatest theologians. And above all, we need love. And love translates to some of the most sublime moments we will ever experience in our lives. This week, we have had some of the most precious moments in our lives, so far. And it is through “smushing” all this family together around a single table; into a motorhome and SUV and trudging through rain and wind and enjoy the beauty of where we live, that we are forging a stronger family. We are blessed.

 

 

 

“Sufficient unto the day is the evil thereof.”

So, I did it again. LOL. I got another tattoo. At my age, with my grandma, crepe-y skin. It hurt. And it bled more than my other one. This one has colors. LOL. But it is still small. It’s on my wrist, just like my other one. I’m a tatted-up grandma. Cracks me up, just to say it, let alone be it!! LOL!  I find it so interesting how people look at you when they see tattoos. I know, because I was like that, too. Immediately judging a book by its very colorful cover. It is such a shallow view of life. Truly, it is. I had one of the best conversations on God, the Crusades, and modern faith with the man who tattooed my first one, a year ago. How people choose to decorate themselves is up to them. Some have different colors of hair, or hairstyles, each time I see them. There are those who pierce themselves (which just looks painful to me!!). Others have long, fake, fingernails in a variety of shades. Women wear all sorts of make-up. Then there is jewelry and clothing, the car you drive, the house you live in, the job you have, the church you go to. It is all adornment of some sort or another. Look at Matthew 6: 25-24 below:

Therefore I say unto you, Be not anxious for your life, what ye shall eat, or what ye shall drink; nor yet for your body, what ye shall put on. Is not the life more than the food, and the body than the raiment? Behold the birds of the heaven, that they sow not, neither do they reap, nor gather into barns; and your heavenly Father feedeth them. Are not ye of much more value than they? And which of you by being anxious can add one cubit unto [a]the measure of his life?  And why are ye anxious concerning raiment? Consider the lilies of the field, how they grow; they toil not, neither do they spin:  yet I say unto you, that even Solomon in all his glory was not arrayed like one of these. But if God doth so clothe the grass of the field, which to-day is, and to-morrow is cast into the oven, shall he not much more clothe you, O ye of little faith?  Be not therefore anxious, saying, What shall we eat? or, What shall we drink? or, Wherewithal shall we be clothed?  For after all these things do the Gentiles seek; for your heavenly Father knoweth that ye have need of all these things.  But seek ye first his kingdom, and his righteousness; and all these things shall be added unto you.  Be not therefore anxious for the morrow: for the morrow will be anxious for itself. Sufficient unto the day is the evil thereof.”

The Lord cautions us not to worry about our clothing (or any adornment) or the food on our tables, but rather, be concerned, firstly, about His kingdom and His righteousness. And don’t worry about “the morrow,” because today has all its own evils. My tattoo is an “omage”, if you will, to my family. I got a “Forget-Me-Not” flower surrounded by 4 hearts and a little swirling going on, all the size of about a quarter. The Forget-Me-Not is the state flower of Alaska. It is also the flower for Alzheimer’s and Dementia. Both of my parents suffer from them. Our nuclear family consisted of mom and dad, my brother and me. So I got the 4 hearts for us. As my brother and I were chatting the other day, he said when he and I start going dementia on our families, and people comment on it, we can say, “It’s just normal in our family.” And we laughed. As I got tattooed yesterday, I died a little bit inside. Because that is the truth of it. We are losing our parents and more than likely, our families will lose us, too.

As I woke up this morning and saw this tattoo – after removing the bandage I wore all night – I noticed all the blue. LOL. I am not really a blue person. I tend more to greens and reds, and lately, purple. The swirling and hearts are purple. But wow, that is a lot of blue. There is even yellow in the center. LOL. Yellow. Yeah; not my color. And as I thought about seeing it all the time, I realized that it may make me uncomfortable, but Alzheimer’s and Dementia are not comfortable, at all. When my oldest son got a tattoo of the “crown of thorns” around his bicep, I cringed. It was ugly. His comment to me was, “Well, Mom, the crown of thorns was ugly. It is supposed to be ugly. If Jesus could wear it on His head and live through it, I can wear it on my bicep and remember that sacrifice.” Now, he wants to morph it into some sort of Celtic thing with his Spartan helmet for his unit in the Army. He sacrificed much for our country and he will be incorporating that crown of thorns into it. I get that. But when I first saw that gorgeous young man of mine with an inked arm, I actually cried. Because I had grown that baby in my womb and the Lord and I labored over making the perfect skin…and he inked it. LOL. I was not a happy mama! And now I have one more tattoo than he does! He was having a ball, giving me alleluia for getting a second one last night! The stinker.

We memorialize things in this world, to remind us of important events and feelings. The Islamists get this and they regularly destroy statues and memorials to history, because they want to erase it from our memories. “Out of sight, out of mind.” People in the South are tearing down memorials to the Confederacy. It seems stupid to me. The Confederacy is alive and well in all its descendants, as is all of our shared Christian history. Tearing down a memorial won’t erase those memories. For me, I have tattoos to remind me; to give me comfort. They are not for anyone else. They may assault the senses of others; they may cause others to look at me differently or perceive who I am differently…that is okay. If my new ink bothers you and you cannot see past it to see me, I am sorry. Perhaps we were not meant to be close friends, after all.

And I wept, thinking about how my parents will be forgotten themselves, as they, too, forget. Neither of them wants a gravesite. Neither wants any sort of memorial service, either. Both asked to be cremated. My dad is donating his body to a medical school in Texas and when they are done with it, they return the cremated remains to the family; my mom is donating her brain to the Alzheimer’s Association and once they remove it they will cremate the rest and return it to her family (me). So I will have no memorial to visit for my parents. And if I somehow am lucky enough to be gifted with Alzheimers and/or dementia, when my family sees my tattoos on my wrist, I hope they will remember the struggles my parents had, and I had with them, and be gentle and kind to me. That they will see my tattoo of the Cross of Jerusalem and remember how fervently I loved God and fought for my faith – to keep it and witness it to them. My personal “Crusade,” fought and lost and won, for them and for me. That when they see this little flower all wrinkled upon my body, they will recall I waited until I was 61 years old to get it, and that I got it for my parents and for them, too. So none of us will forget each other, as we wade into the uncertain future.

“Serving up memories since….”

We are chipping away at “settling in” to the new house. Yesterday, my daughter-in-law put up a vinyl sign I bought on Amazon for my kitchen. She bought me one for my laundry room, too.

I have not really embraced the idea of these vinyls up until now. They seem more like stickers to me. LOL. But I really like how they turned out. The laundry room one makes me giggle every time I see it. And it is sort of me, making my mark on our new home. “Settling in” is a process. It’s not an event, so for me, there is no deadline associated with it. But I am getting antsy about our garage, because it is a morass of boxes…stacks of them. And there are items I am keeping but don’t need to see all the time. We have shelves and shelves in the garage. So we can take things out of boxes and put them on the shelves, where we can use them. I am leaning so towards getting rid of more stuff! LOL! I have heard the adage, “If it is in a box or cupboard and you have not used it in 6 months, get rid of it.” And I like that. The exception up here are seasonal things like snow boots and snow shovels, versus camp chairs and bar-b-que items. They change out by season and sometimes winter is 6+ months and more. Unfortunately, summer never is. LOL.

I’m not sure what happened to summer. Things are already closing up. I spoke with our favorite nursery people yesterday and they were selling everything at 50% off, giving us instructions on how to plant what we chose, and how to winterize it once it was planted. Winterize. I am not ready for that, yet. My mom is due up here the last week of August and I am fearful it will already be cold.

I had a long talk with my dad yesterday (he’s on the left, pictured above with my brother about 3 years ago) and he is 90 years old. He also has Alzheimer’s, and Parkinson’s with dementia, as well as issues with severe trigeminal nerve pain. He is on tons of medications; last count it was 14 medications daily. And it is all hard for him. He has not been a medication person for most of his life, and prides himself on his intellectual prowess. He knows he is losing it. He is aware he is not as nimble as he was. He gets the Parkinson’s thing. But he hates that his driver’s license was taken away, and he thinks, somehow, they own a new car he was not told about. And he is generally, well, pissed off. He is not taking this aging thing gracefully, at all. He does not want to “winterize.” I told him he was 90 and it was okay to relax a little. His response was, “You may as well bury me now, then.” LOL. Growing up his daughter has been interesting, to say the least. Definitely never smooth sailing. And how do you prepare for a winter in your life like that? My brother and I were joking that we are sort of screwed. Our mom has Alzheimer’s, too. So my brother said, “When we start acting all weird with dementia, we can just blow it off and say, ‘Nah, it’s normal in our family.'”  Sadly enough, and funnily enough, it is true. And he and I also have cancer in our family. So how do you prepare for your own winter? What boxes do you need to go through? What can you do without, because you don’t really use it?

Dealing with stuff is not fun. There is “stuff” everywhere in life. Right now, I am dealing with a garage full of stuff that we somehow needed and had to box up and move with us. And after living in our new home for a month, I know there are things I normally use that I cannot find, especially in the kitchen. Household tools I am used to relying on to get the job done. Stupid things like spatulas I like or a particular bowl I prefer to use. Alzheimer’s and dementia are like that. You go to reach for the familiar and it is not there. Instead, there is a blank space; a hole. And it throws you off. A lot. Some people react in anger. Some get quiet and just repeat sentences over and over, trying to reconcile that empty space. And even others refuse to admit there is anything wrong with them, and that it is the problem with everyone around them. Denial. I have been in denial for a month that I need to get into all those boxes out there…that bowl or spatula are somewhere! And how do I make my mark on this house, this life, before there are too many missing pieces and I can no longer function? If you think I haven’t thought of that, you don’t know me well, I guess. I am always thinking of the “what ifs” in life, in addition to all the “what happens when…”

Am I scared? Sort of. But I seriously don’t have the luxury of time to sit and reflect on it too much, other than the occasional blog post or conversation. I am preparing to have my mom move in with me, because she is experiencing too many holes and she can no longer be alone. Caregivers apparently wear out and need help at some point, too. Right now, it is full speed ahead. We are diving into the boxes today. We are trying to get this organization all done so we can rest easier, and welcome my mom to her forever home. Because neither of us plans on ever moving again. Ever. Scared? I don’t have time to worry about it. Too many details to attend to. My dad told me he worries for me, that I will be overwhelmed with caring for my mom, and that he prays for me. I like that. At least he is cognizant enough to say it and to spend the mental effort sharing that with me. Mom is just resigned to living with her daughter. LOL. Me? I am organizing now, so I can enjoy my time with her later.

I am also looking forward to the future. I am flying to spend time with my son and his family. I have a grand daughter I need to meet and cuddle with. I have friends to catch up with. And I have my mom to pack up and fly back with. My sister and brother-in-law are coming with us, so I have some tourist-hosting to look forward to. There are so many positives. God is good. I am blessed. I have a new hair-do I am still fiddling with, and today I will find that stupid spatula and I will conquer the chaos in the garage. The rest will follow in kind. Feeling optimistic and full of love and hope in tomorrow. Winterize? I’ll work on it.

“Then the King will say to those on his right…”

So, it’s getting real. I am making travel plans and arrangements for rental cars and return flights and packing boxes and getting medical care…my mom is actually moving in with us. For sure. The end of August. My mom has Alzheimer’s and dementia. It’s a mixed bag of symptoms and I would say she is not your average Alzheimer’s patient. If you did not know she had it, you would not think she had it. Unless you chat with her for more than 10 minutes, and then you will know. She takes great care with her appearance and pays attention to fashion. She always wears make up and matching jewelry. My mom does not look 87 years old. She’s a tiny woman, at barely 4’10”, but she is an amazingly strong woman. She left everything she knew and was familiar with, and as an only child, left New Zealand to come to America to follow my dad’s dream. She made a life here, for herself. She loves America and her family. She would do whatever it takes for any of us, who are lucky enough to have her love and devotion. And now she needs our help.

Why do I have this pit in the center of my stomach??? My son said, “Grandma won’t take over the family here; she’ll just be another one of the kids.” Boy, I sure hope so. We are all a little nervous about the impact of having her here. I haven’t lived with her since before I was married. I have been married 33 years this year and with my husband for over 35 years. So, its been awhile since she and I were roomies. And trust me, the moment I turned 18, I moved out! I was back and forth over college a few times, but since my 20s I have not lived with my mom. This is going to be a huge adjustment. But I also know this is what is right and what will be the best for us all. I trust God and His plan for us.

And when this pit develops in my stomach, I continually think back to these words from the Book of Matthew, Chapter 25, verses 30-45:

“When the Son of Man comes in his glory, and all the angels with him, he will sit on his glorious throne. All the nations will be gathered before him, and he will separate the people one from another as a shepherd separates the sheep from the goats. He will put the sheep on his right and the goats on his left.

 “Then the King will say to those on his right, ‘Come, you who are blessed by my Father; take your inheritance, the kingdom prepared for you since the creation of the world. For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, I needed clothes and you clothed me, I was sick and you looked after me, I was in prison and you came to visit me.’

 “Then the righteous will answer him, ‘Lord, when did we see you hungry and feed you, or thirsty and give you something to drink?  When did we see you a stranger and invite you in, or needing clothes and clothe you? When did we see you sick or in prison and go to visit you?’

 “The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’

 “Then he will say to those on his left, ‘Depart from me, you who are cursed, into the eternal fire prepared for the devil and his angels.  For I was hungry and you gave me nothing to eat, I was thirsty and you gave me nothing to drink,  I was a stranger and you did not invite me in, I needed clothes and you did not clothe me, I was sick and in prison and you did not look after me.’

 “They also will answer, ‘Lord, when did we see you hungry or thirsty or a stranger or needing clothes or sick or in prison, and did not help you?’

 “He will reply, ‘Truly I tell you, whatever you did not do for one of the least of these, you did not do for me.’

In the old days, families lived together in multiple generations, with grandma and grandpa around all the time. We now opt to warehouse our senior population. But we need to concern ourselves with the fact that more and more people are going to need our help as they age. Watching a recent “TED Talk” I learned that the statistics show that more than 70 million people will have Alzheimer’s in the coming decade. Do you realize how many people that is??? There are 210 countries in the world with less than 70 million people. Karachi, Pakistan is the most populated city with 14.5 million, followed by Shangai and then Mumbai, India. The three together do not equal 70 million. New York only has 8 million, and Los Angeles just over 3 million. I don’t think we are prepared for 70 million people to have Alzheimer’s. And when there are 70 million people with Alzheimer’s, I fear for their very lives. Because the culture of death is all around us. There have been more than 22 million abortions worldwide so far this year (according to the site, NumberofAbortions.com).

22 Million abortions in 2017 – so far. Staggers the mind. 70 Million with Alzheimer’s in the next decade. Hard to fathom. And I am preparing to care for just one life. One life. I think it is the least I can do.

“The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’”

 

 

The pain of memories…

So some days there are moments when your head just explodes. Sometimes it is a result of not enough caffeine (rare in my house) or not enough sleep (becoming the norm), and sometimes it is fall-out from interacting with others. For me, it has been a combination of moving (the physicality of it all, in addition to the emotional stress of relocating) and of trying to restore order and normalcy to our life habits, in addition to the preparation for my mom to come and live with us. So much change!!

My true pain came from a FaceTime session with my ailing mom. I realized how much this stupid disease is stealing from us all. She had no idea who my grandchildren were, nor did she truly understand what she was seeing. I took her on a tour of our new home, and showed her the room she would be living in, as well as her bathroom. Her comment was, “Well, at least I don’t have to go outside in the snow to go pee.” And we chuckled at it. (She has some odd, but common, misconceptions about life in the “Last Frontier”).  And then, as I walked from the bathroom, around a corner, to the living room, she asked me, “Are you ever going to move to a bigger house?” She was back to the house we just moved from, in her mind. It took about 3 minutes. And when my sister and I reminded her that she could not stay where she is, she said, “I’m not leaving here until I die.” And she was adamant about it. My sister and I exchanged looks, knowing this will be such a hard transition for her – for all of us, really.

But what prepares us for this process? Not much, really. I have not taken a course on caring for aging parents (I probably should look into that). I know my mom will probably become a toddler again, in some ways. It hurts my heart for her and her dignity. And dreams we all had of growing old and sharing our children and grandchildren. I am hoping that being around my grandchildren will energize her (or wear her out! Ha-Ha!).

And I am confused, as well, by all this information I keep seeing about why the preponderance of dementia and Alzheimer’s disease is so rampant in the USA – some link it to our diets, some to our sedentary life style, or processed foods, or the mercury in all those old vaccinations we were forced to get in the 40s and 50s and 60s. There are now so many dementia patients who are only in the their 40s! And it is not in Europe or elsewhere as pronounced as it is in America. I question standard medical practice and embrace much that is considered alternative. Why? Well, I grew up around medicine and I know they play at it. I have seen doctors create solutions on the fly, going against normal procedures on a whim, and having it work out better than what they would have achieved, had they not been creative. I have seen chemical mistakes turn into cures. My brother broke his hand – crushed his fingers – on a Saturday afternoon when he was, I believe, 14 or 15. He was one of the star running backs at our high school. Did my dad rush him to the local ER? No. He drove him about an hour away, after having called his friends (no cell phones in those days) who met him at the hospital where they all had faculties, and they experimented and came up with a casting system (it was replaced several times during the season) that would allow him to pass the referee’s requirements thereby keeping the season intact. Did my parents pay for that? They did not. Did my brother get excellent medical attention? You bet he did. But medicine and research of his incident was used as the payment. He was their guinea pig. My point? Science can be flexible. There are thousands of stories of doctors and staff using their families as guinea pigs. So I know there is stuff going on out there, for this horrid disease. I also KNOW that big pharma has a hand in all of this. Why cure Alzheimer’s and dementia when there is money to be made off the victims? Why cure many of these horrible diseases when healthy patients don’t need to see their doctor or take their medications as often or as long? When did medicine become pharmacy instead of prevention?? When did dietary and exercise advice become a prescription or a surgical procedure? When did doctors stop treating the person and just focus on the symptom?? It makes my head spin.

After my frustrating FaceTime with my mom, with my head exploding, I laid down on my bed. I diffused lavender essential oil on my dresser. I cuddled with my cat. I cried for my mom. I cried for my kids and grandchildren, too. I have a parent with Alzheimer’s, which means it is more likely I may get it, too. My dad has Parkinson’s Dementia. (I am not sure about my possibility for Parkinson’s, but it is out there). But it seems like the medication he is taking keeps him more with us than when he was first diagnosed. (Shocking result, to be honest. I seriously doubt our pharmaceutical world). He is having more Parkinson’s symptoms and less of the dementia, although he had to stop driving. He has a hard time even walking some days. His speech today was slurred, but as we spoke longer, his voice got steadier and we had a great conversation. I cried. I know my parents are leaving me. And I realized how lonely that can leave you, even with a spouse, children, and siblings left behind with you. And I cried for my future. How long do I have with my husband and children, and grandchildren? Moving exhausts you; it truly does. I am pretty spent. And the future is just so cloudy, surrounded by lots of tears.

I will rise up. I know I will. My exhaustion brings on melancholy and thinking. Ha-Ha. Maybe I just need that cup of tea and a break! I know my world will continue through my sons, daughters-in-law, and grandchildren. And I know I have lots of time to spend with them, making memories for them to hold after I am gone. Right now, I am still facing a garage full of boxes. Many of them contain my memories. So I will bask in those wonderful memories, as well as embrace what is before me. I will also prepare for my future. My hubby and I realize we need to return to our Whole30 eating regime and add back in some supplements for our future health. We need to stop being lazy in food and meal prep, as well as getting ourselves healthier. Mindwise is back on the menu for me!

I still may have to escape to the mountains for some much needed respite. And believe me, I know that sounds funny, coming from someone who lives in Alaska, in a town of just 8,845 people! But the mountains do call to you! Almost as much as all this green growing all around me gives me peace, the mountains give me stability. I know I am tired. And I know I am blessed. I also know summer is coming. The sun will help. So does God. 

 

 

“…break off and have a cup of tea.”

God is so good. I am loving my journaling experience so much, and I am filled with hope, and joy. I am so beat-up tired, but I am happy. Exultant, even. I am so over moving. I truly hate packing stuff and shoving it into a box. I really do. I am, however, looking forward to our new home and putting down some roots. It feels good.

And then my day got going. And I had a fairly enjoyable time, enjoying breakfast with my kids and grandkids, getting some stuff we needed at the store, gas in my car, and resting up a bit (it was Sunday). And then we headed over to our son’s home, where he is installing a fence.

Sunday was a feast day – the celebration where the Apostles were filled with the Holy Spirit. I mean, I can sort of relate to how the Apostles must have felt. They had followed this Man who filled them with joy and awe. He was healing people and speaking truths they had never pondered. He was doing and saying things that normal men could not do. Who was He? Was He truly God Incarnate? Their lives were up-ended and completely changed. And then He was crucified. It was a horrific death. And the politics were crazy at the time, too. They ran; they hid; they were afraid. He promised He would return, and He did! He showed up in their midst with the holes in His hands to prove it was Him. But then He said He had to “go home” to the Father. And they were, once again, afraid. He also promised to send them the “Holy Spirit,” Who would fill them with love and be with them always. And we celebrated this on Sunday – the Descent of the Holy Spirit onto the Apostles – Pentecost – 40 days after Christ rose to be with His Father, our God. And we believe the Holy Spirit is still with us, protecting us and enervating our lives. We keep this sense of the holy within us. We celebrate how the Holy Spirit resides in all peoples, across the world. Some believe that can only happen if you accept Christ as your personal Savior. Others say only 144,000 will be saved. (Had that argument a time or two). Still others say that only if you are baptized in their church, are you “saved” and going to heaven. Yeah; I have other things to say on that.

People teach their children by their words and their actions. And if you keep them at home to school them, you are their sole example of life. That is it. I know many homeschoolers who isolate their children from the world, thinking it will somehow save them from being affected by it. I have known homeschooled kids who also snuck off every free moment to do drugs and have wanton sex with many partners, while teens, and while being perceived as “innocent” and “precious darlings” by their naive parents. Boy, were they surprised (and frankly, so was I about some of them!!). And I have known many publicly schooled children who were far better saints. I believe it has something to do with how you model life for them. How you are in front of your children, when no one else is there. Those precious, teachable moments. Those moments cling far more than an English paper they were forced to write, prayers they had to memorize, or keeping your kids away from other children who are being raised differently than you are raising yours. We chose to homeschool for the academics, and the faith followed. But we never isolated our kids. For most of their pre-teen years, we had no network TV. However, they played baseball, soccer, ice hockey, and even rugby. Our kids were always in this world, but we taught them to not be of this world. And I saw character in my kids yesterday, and I was proud of them.

I was, however, profoundly disappointed in myself yesterday. I was angry. I was not carrying a palm branch for peace to anyone. I was not an example of the Holy Spirit to anyone. I was a mother bear and I was going to bat for my kids. And my kids have kids. They are adults. They are married. LOL. It doesn’t matter one iota. Someone has been attacking my family and I was protecting them. Trust me. Do not harm my family. Ever. But I am disappointed that I allowed my protectiveness for my family to over-ride my faith. I know Jesus lost His temper many times. And He was totally justified. I am not sure I was. I did not model a decorous, peace-loving, quiet hearted, Christian woman. Rather, I was a shouting, angry, protective mother. Not good. My heart was racing and I as so very, very angry. It has taken about a year to build up, with my kids being insulted and spoken down to; having their dreams shattered at the hands of people who say they are one thing, but act totally the opposite; and having people do little things to place yet another pea in the mattress of my kids’ lives. And when I received a call with an hysterical, sobbing, daughter-in-law on the phone, I reacted. We raced to their sides. (We discovered my new car has a lot of “pick up and go”!!) We defended our family. And their legal rights. And their character. And we tried to shelter the little children from all of it.

The truly sad thing is that these people did not shelter their kids, at all. And they affected my grandchildren. Ugh. I get angry just reliving the moments. And I missed going to Church, trying to calm everyone (and myself) down; trying for a compromise with people who don’t understand the concept of what that truly means; and trying to help my own kids feel like they were not bad people, after having their very character called into question. It devolved so badly, it will now be in the hands of their attorney. (They already consulted with their attorney and KNOW they have all the rights and these other people have no leg to stand on. And yet, refuse to accept the legality of it. Raspberry bushes and fences – disrespectful people and little children run astray. It could be a soap opera. And now we start the next phase. So so sad!). And my grandson, last night, asking his dad if he was all those things the neighbors accused him of being. Broke our hearts.

And so, how do I find peace? How do I relate to the Holy Spirit in this conflict? I was told many years ago, by a priest, that sometimes we are called to be elsewhere, doing other things, and not be attending Church, and, that at those moments, we are BEING Church. Like when you want to be a part of the Liturgy, celebrating Easter (this totally happened to us) and have a VERY FUSSY BABY, that will not be calmed by anything other than a nice stroll in the sunshine, outside of the Church building. And your priest calmly telling you that at that moment, pacing with your baby, you were doing exactly what God called you to do, and that is BEING CHURCH. Not attending, and barely even taking anything in, but BEING what it means to be called, “Christian.” And through my anger yesterday, I knew I was off the rails a little bit. My presentation lacked. But the message was the same. (Stop spouting things at people, being a hypocrite and not living the same things you pretend you are. Stop accusing and manipulating your children; stop acting out like a child yourself. Take personal responsibility for raising good, Christian kids, like you say you are.). I said many things that were truth, but they perhaps were lost in the presentation, and for that I sought forgiveness. Not what I said, but how I delivered it. And in the end, I felt the hand of God on our family. The Spirit was there. (Perhaps in overabundance of fervor and zest, but there!).

We all learned something about ourselves yesterday. We truly, truly love one another. We will be there in a pinch. When the chips are down, we know we have one another’s back. We are blood – by birth or choice – and we are united. In all of it. And for that little test, I am supremely grateful. Our family is strengthened and was proofed in fire, so to speak. Thanks be to God.

I also learned that sometimes my sense of family, and my protective instincts, get the better of me. And I need to work on that. There are so many wise Church Fathers who exhort us to let the things of this world pass us by. And I forgot it all yesterday. Which means I have so far to go in my growth as a good, solid, Christian woman. And for that, I will redouble my efforts at finding that sweet spot between being in this world, and becoming a part of it. The Saints really had that down – our recent, modern day martyrs for the faith in the Middle East and elsewhere have exhibited it, far better than most of us, up until experiencing even death for their faith. I fell remarkably short.

Father Vasile Tudora posted on the Orthodox Christian Network. In an article about Depression, he wrote:

“So what to do? In an interview I recently read, the Archimandrite Sophrony Sacharov, of blessed memory, at that time a younger monk, was asked by a visiting priest: “Fr. Sophrony, how will we be saved?” Fr. Sophrony prepared him a cup of tea, gave it to him, and told him, “Stand on the edge of the abyss of despair and when you feel that it is beyond your strength, break off and have a cup of tea.” Obviously this was a very odd answer, and the young priest was definitely confused. So off he went to St. Silouan the Athonite, who lived not far from there, and told him everything, asking for advice. Long story short, next day, St. Silouan came to the cell of Fr. Sophrony and the two started a conversation about salvation. The beautiful fruit of their conversation was an unforgettable phrase that I would like to also offer as the answer to our conversation today about depression: “Keep your mind in hell and despair not.”

At first glance, St. Silouan’s take on salvation is not less strange that Fr. Sophrony’s initial answer, but it actually makes great sense. In traditional Christianity, the difficulties of life, the hardships are assumed as part of our fallen existence. Our bodies and our minds suffer the torments, but this is nothing but a temporary stage. The ascetic Fathers considered them as tests on par with the athletic exercises, very useful in practicing and improving the powers of the soul like patience, kindness, hope, faith and so forth. We keep our mind in hell when we consciously assume the pain of living in a fallen world, when we learn from this passing agony to avoid the even greater torture of an eternity without Christ. But there is hope in this suffering because Christ himself has suffered them first and has opened for us a way out of despair, a way out of pain, a way out of death. Christ is the well of life, the bread of eternity, and the only Man we need.

So as Christians we keep our minds in hell and we despair not, but courageously give glory to God in all things, even in pain, hoping, always hoping, in our Savior, the only One who can take us out of the brink of despair and set us for a new life in Him. In Him we put our hope, in Him we find our purpose, and on Him we set our goal.”

And today, I take solace in loosing my temper, in being a poor example. Because today, at 4:30 am, awaking from a fitful sleep, I realized that the great work of my salvation is far from over. It is still a work in progress. I did not accept Christ into my life as a one-time experience and was then perfected. He snuck into my heart, little by little, embedding Himself in the nous of my existence. And He exhorts me, even in my sleep, to reach for better. To keep getting up again, retrying my salvation in light of this world, and to learn to be thankful each time I do misstep and fall, because He is there, helping me back up. And the Holy Spirit is in me, whispering for me to rise up out of my bed and deal with the things that flutter in my heart, causing me unrest; causing me to rise with the bleak rainfall and see the green that is growing around me, the world that is blooming after a harsh winter, giving me courage to keep trying. Hope. It is still there, and I am smiling again today.