“…like a weaned child, I am content.”

Things change. And change is almost always difficult. And learning is sometimes rough, as well. But when you get to the other side, there can be joy. Growth is amazing. And change can bring new light to your life.

“The light shines in the darkness, and the darkness has not overcome it.”       John 1:5

Our journey has been tough (and it is far from over or settled) but I brought some of the practices of my faith into dealing with this horrific disease, Alzheimer’s. And they seem to work for bringing centering and peace, even when faith is not the ultimate object or goal. Silence and a quiet environment, and a steady environment, has made so much of a positive difference. Just like silence is where we seek the wisdom of God in our lives, it can sometimes completely center us in all our life’s aspects.

I was being fed stories about how busy people are, etc. from several people I trusted. But what I found, in reality, was the busy-ness was to avoid much of life. When someone has Alzheimer’s, their ability to participate in life is greatly diminished. They think they are participating, but they are truly observing. Moving about and going from event to event gives them a sense of involvement, but it is just keeping them busy. As I researched the schedule at the senior complex where my mom used to live, there was something every hour, all day long. So when my mom came to live in our home, she complained, and was angry, about being bored. Nothing to do. Nowhere to go. To entertainment to be had. She forgot how to entertain, and busy, herself. It was all about playing Wii bowling. About going to this event or that event. After days of explosions and anger, I just decided enough was enough. We stopped. We stayed home. We stayed quiet.

“My heart is not proud, Lord, my eyes are not haughty; I do not concern myself with great matters or things too wonderful for me. But I have calmed and quieted myself, I am like a weaned child with its mother; like a weaned child I am content.” Psalm 131:1-2

One of the things I am learning (through this Alzheimer’s class I am taking online) is that as a caregiver, it is my goal and my purpose to bring peace and contentment to my mom. And lately, contentment has been so apparent. And it is wonderful to see. Wonderful to be around. And it came through stopping this “busy-ness” and allowing a calm to take over. And there has been an emergence of peace, gentleness, and far less confusion. And so much more apparent, there is genuine love. That has not, yet, been forgotten.

Alzheimer’s is fatal. As one of our teachers said, “Life is fatal.” It is. We all die. But most of us pass away with ourselves intact. Alzheimer’s destroys the brain, bit by bit, And each day that passes, more is irrevocably lost. The patient becomes disintegrated, mentally, and is no longer rationally intact. It makes each day unique unto itself. Because not only is each day unique, due of the progression of this horrific disease, each moment is unique. What works at 9am may be totally wrong at 10am. And so it is a tight-rope walk each day. But the explosions and the confusion, and the underlying agitation, those are less and less. Her memories of what she used to do and where she used to live, the people she hung out with, those are fading. She is even using incorrect terms when referring to them. And she is not less because of it, nor is she missing it, nor is she angry about moving. She adores her bed and her room. Each night, she sighs and comments on how much she loves that bed! It has become a source of joy for me. We have had frank discussions about her end-of-life choices and have had some incredibly peaceful discussions about how she wants to die. It melted my heart. We communicated well and we found commonality and peace with her choices. I cling to those moments.

Patients with Alzheimer’s are aching. Because their world is contracting and they find it harder and harder to connect with people each and every day. They get frustrated and so very confused. And taking care of them infects the lives of their caregivers. There are days when I feel like I adopted a 3-year-old. And there are days when I just want to go back to bed. I have stacks of paperwork I am trying to get through, but will someday have to tackle. And I am cooking and cleaning and doing laundry for 4 now. I am learning how to work with someone who doesn’t fully understand the moment and it is good, stretching “muscles” I did not know I had not used in awhile. Caregivers find they are tugged, stretched, and pulled in ways they did not know they could survive, let alone thrive. I am far more tired these days, but I am not wasting many of them! I am too busy!

The joy I see each night, and the hugs I get every evening, complete with profuse thanks for all we are doing for her, well, that pretty much makes it all worthwhile. I haven’t got this cornered and I truly don’t have all the answers, but I do know God is blessing our lives. He is helping keep me quiet and centered. And I enjoy feeling the peace seep into in our quiet mornings, and the contentment I feel in our warm, slow, and quiet evenings. I fall into bed, exhausted each night. Tonight is no different. Tomorrow will be a new day in almost every way. But I will greet the day with hot coffee, and with gratitude for this incredible journey…

 

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“Sufficient unto the day is the evil thereof.”

So, I did it again. LOL. I got another tattoo. At my age, with my grandma, crepe-y skin. It hurt. And it bled more than my other one. This one has colors. LOL. But it is still small. It’s on my wrist, just like my other one. I’m a tatted-up grandma. Cracks me up, just to say it, let alone be it!! LOL!  I find it so interesting how people look at you when they see tattoos. I know, because I was like that, too. Immediately judging a book by its very colorful cover. It is such a shallow view of life. Truly, it is. I had one of the best conversations on God, the Crusades, and modern faith with the man who tattooed my first one, a year ago. How people choose to decorate themselves is up to them. Some have different colors of hair, or hairstyles, each time I see them. There are those who pierce themselves (which just looks painful to me!!). Others have long, fake, fingernails in a variety of shades. Women wear all sorts of make-up. Then there is jewelry and clothing, the car you drive, the house you live in, the job you have, the church you go to. It is all adornment of some sort or another. Look at Matthew 6: 25-24 below:

“Therefore I say unto you, Be not anxious for your life, what ye shall eat, or what ye shall drink; nor yet for your body, what ye shall put on. Is not the life more than the food, and the body than the raiment? Behold the birds of the heaven, that they sow not, neither do they reap, nor gather into barns; and your heavenly Father feedeth them. Are not ye of much more value than they? And which of you by being anxious can add one cubit unto ^[a]the measure of his life?  And why are ye anxious concerning raiment? Consider the lilies of the field, how they grow; they toil not, neither do they spin:  yet I say unto you, that even Solomon in all his glory was not arrayed like one of these. But if God doth so clothe the grass of the field, which to-day is, and to-morrow is cast into the oven, shall he not much more clothe you, O ye of little faith?  Be not therefore anxious, saying, What shall we eat? or, What shall we drink? or, Wherewithal shall we be clothed?  For after all these things do the Gentiles seek; for your heavenly Father knoweth that ye have need of all these things.  But seek ye first his kingdom, and his righteousness; and all these things shall be added unto you.  Be not therefore anxious for the morrow: for the morrow will be anxious for itself. Sufficient unto the day is the evil thereof.”

The Lord cautions us not to worry about our clothing (or any adornment) or the food on our tables, but rather, be concerned, firstly, about His kingdom and His righteousness. And don’t worry about “the morrow,” because today has all its own evils. My tattoo is an “omage”, if you will, to my family. I got a “Forget-Me-Not” flower surrounded by 4 hearts and a little swirling going on, all the size of about a quarter. The Forget-Me-Not is the state flower of Alaska. It is also the flower for Alzheimer’s and Dementia. Both of my parents suffer from them. Our nuclear family consisted of mom and dad, my brother and me. So I got the 4 hearts for us. As my brother and I were chatting the other day, he said when he and I start going dementia on our families, and people comment on it, we can say, “It’s just normal in our family.” And we laughed. As I got tattooed yesterday, I died a little bit inside. Because that is the truth of it. We are losing our parents and more than likely, our families will lose us, too.

As I woke up this morning and saw this tattoo – after removing the bandage I wore all night – I noticed all the blue. LOL. I am not really a blue person. I tend more to greens and reds, and lately, purple. The swirling and hearts are purple. But wow, that is a lot of blue. There is even yellow in the center. LOL. Yellow. Yeah; not my color. And as I thought about seeing it all the time, I realized that it may make me uncomfortable, but Alzheimer’s and Dementia are not comfortable, at all. When my oldest son got a tattoo of the “crown of thorns” around his bicep, I cringed. It was ugly. His comment to me was, “Well, Mom, the crown of thorns was ugly. It is supposed to be ugly. If Jesus could wear it on His head and live through it, I can wear it on my bicep and remember that sacrifice.” Now, he wants to morph it into some sort of Celtic thing with his Spartan helmet for his unit in the Army. He sacrificed much for our country and he will be incorporating that crown of thorns into it. I get that. But when I first saw that gorgeous young man of mine with an inked arm, I actually cried. Because I had grown that baby in my womb and the Lord and I labored over making the perfect skin…and he inked it. LOL. I was not a happy mama! And now I have one more tattoo than he does! He was having a ball, giving me alleluia for getting a second one last night! The stinker.

We memorialize things in this world, to remind us of important events and feelings. The Islamists get this and they regularly destroy statues and memorials to history, because they want to erase it from our memories. “Out of sight, out of mind.” People in the South are tearing down memorials to the Confederacy. It seems stupid to me. The Confederacy is alive and well in all its descendants, as is all of our shared Christian history. Tearing down a memorial won’t erase those memories. For me, I have tattoos to remind me; to give me comfort. They are not for anyone else. They may assault the senses of others; they may cause others to look at me differently or perceive who I am differently…that is okay. If my new ink bothers you and you cannot see past it to see me, I am sorry. Perhaps we were not meant to be close friends, after all.

And I wept, thinking about how my parents will be forgotten themselves, as they, too, forget. Neither of them wants a gravesite. Neither wants any sort of memorial service, either. Both asked to be cremated. My dad is donating his body to a medical school in Texas and when they are done with it, they return the cremated remains to the family; my mom is donating her brain to the Alzheimer’s Association and once they remove it they will cremate the rest and return it to her family (me). So I will have no memorial to visit for my parents. And if I somehow am lucky enough to be gifted with Alzheimers and/or dementia, when my family sees my tattoos on my wrist, I hope they will remember the struggles my parents had, and I had with them, and be gentle and kind to me. That they will see my tattoo of the Cross of Jerusalem and remember how fervently I loved God and fought for my faith – to keep it and witness it to them. My personal “Crusade,” fought and lost and won, for them and for me. That when they see this little flower all wrinkled upon my body, they will recall I waited until I was 61 years old to get it, and that I got it for my parents and for them, too. So none of us will forget each other, as we wade into the uncertain future.

“Serving up memories since….”

We are chipping away at “settling in” to the new house. Yesterday, my daughter-in-law put up a vinyl sign I bought on Amazon for my kitchen. She bought me one for my laundry room, too.

I have not really embraced the idea of these vinyls up until now. They seem more like stickers to me. LOL. But I really like how they turned out. The laundry room one makes me giggle every time I see it. And it is sort of me, making my mark on our new home. “Settling in” is a process. It’s not an event, so for me, there is no deadline associated with it. But I am getting antsy about our garage, because it is a morass of boxes…stacks of them. And there are items I am keeping but don’t need to see all the time. We have shelves and shelves in the garage. So we can take things out of boxes and put them on the shelves, where we can use them. I am leaning so towards getting rid of more stuff! LOL! I have heard the adage, “If it is in a box or cupboard and you have not used it in 6 months, get rid of it.” And I like that. The exception up here are seasonal things like snow boots and snow shovels, versus camp chairs and bar-b-que items. They change out by season and sometimes winter is 6+ months and more. Unfortunately, summer never is. LOL.

I’m not sure what happened to summer. Things are already closing up. I spoke with our favorite nursery people yesterday and they were selling everything at 50% off, giving us instructions on how to plant what we chose, and how to winterize it once it was planted. Winterize. I am not ready for that, yet. My mom is due up here the last week of August and I am fearful it will already be cold.

I had a long talk with my dad yesterday (he’s on the left, pictured above with my brother about 3 years ago) and he is 90 years old. He also has Alzheimer’s, and Parkinson’s with dementia, as well as issues with severe trigeminal nerve pain. He is on tons of medications; last count it was 14 medications daily. And it is all hard for him. He has not been a medication person for most of his life, and prides himself on his intellectual prowess. He knows he is losing it. He is aware he is not as nimble as he was. He gets the Parkinson’s thing. But he hates that his driver’s license was taken away, and he thinks, somehow, they own a new car he was not told about. And he is generally, well, pissed off. He is not taking this aging thing gracefully, at all. He does not want to “winterize.” I told him he was 90 and it was okay to relax a little. His response was, “You may as well bury me now, then.” LOL. Growing up his daughter has been interesting, to say the least. Definitely never smooth sailing. And how do you prepare for a winter in your life like that? My brother and I were joking that we are sort of screwed. Our mom has Alzheimer’s, too. So my brother said, “When we start acting all weird with dementia, we can just blow it off and say, ‘Nah, it’s normal in our family.'”  Sadly enough, and funnily enough, it is true. And he and I also have cancer in our family. So how do you prepare for your own winter? What boxes do you need to go through? What can you do without, because you don’t really use it?

Dealing with stuff is not fun. There is “stuff” everywhere in life. Right now, I am dealing with a garage full of stuff that we somehow needed and had to box up and move with us. And after living in our new home for a month, I know there are things I normally use that I cannot find, especially in the kitchen. Household tools I am used to relying on to get the job done. Stupid things like spatulas I like or a particular bowl I prefer to use. Alzheimer’s and dementia are like that. You go to reach for the familiar and it is not there. Instead, there is a blank space; a hole. And it throws you off. A lot. Some people react in anger. Some get quiet and just repeat sentences over and over, trying to reconcile that empty space. And even others refuse to admit there is anything wrong with them, and that it is the problem with everyone around them. Denial. I have been in denial for a month that I need to get into all those boxes out there…that bowl or spatula are somewhere! And how do I make my mark on this house, this life, before there are too many missing pieces and I can no longer function? If you think I haven’t thought of that, you don’t know me well, I guess. I am always thinking of the “what ifs” in life, in addition to all the “what happens when…”

Am I scared? Sort of. But I seriously don’t have the luxury of time to sit and reflect on it too much, other than the occasional blog post or conversation. I am preparing to have my mom move in with me, because she is experiencing too many holes and she can no longer be alone. Caregivers apparently wear out and need help at some point, too. Right now, it is full speed ahead. We are diving into the boxes today. We are trying to get this organization all done so we can rest easier, and welcome my mom to her forever home. Because neither of us plans on ever moving again. Ever. Scared? I don’t have time to worry about it. Too many details to attend to. My dad told me he worries for me, that I will be overwhelmed with caring for my mom, and that he prays for me. I like that. At least he is cognizant enough to say it and to spend the mental effort sharing that with me. Mom is just resigned to living with her daughter. LOL. Me? I am organizing now, so I can enjoy my time with her later.

I am also looking forward to the future. I am flying to spend time with my son and his family. I have a grand daughter I need to meet and cuddle with. I have friends to catch up with. And I have my mom to pack up and fly back with. My sister and brother-in-law are coming with us, so I have some tourist-hosting to look forward to. There are so many positives. God is good. I am blessed. I have a new hair-do I am still fiddling with, and today I will find that stupid spatula and I will conquer the chaos in the garage. The rest will follow in kind. Feeling optimistic and full of love and hope in tomorrow. Winterize? I’ll work on it.

“K.I.S.S.”

My little corner of the world is in a state of flux. There is just so much going on. Little things, yes, but add them together and it’s much, much bigger! And I am trying to not be overwhelmed by all the myriad of little detail-y things that bog you down and make you crazy.

 

 

I am flying to CA to visit with my son and his family, in time for my granddaughter’s birthday, to visit a friend, and to retrieve my mom. She will be moving home with me. And my sister and brother-in-law are flying home with us, to get her settled in. I am flying in to Las Vegas, because it was cheaper, and I had a 2-hour drive anyway. And as my son pointed out, the desert is much kinder than downtown LA traffic. Yes; yes it is. So many arrangements to make, in just those few items I mentioned. It boggles the mind.

I spent a day cleaning a house a friend is trying to move out of, and then I spent time with another friend (and I so enjoyed our chatting) and after that, I was off to water aerobics with my daughter-in-law, leaving our spouses to babysit and cook dinner. Yeah. Not complicated at all. The next morning, I was up early, grabbing coffee and heading off to babysit so my grandson could get his kindergarten immunizations. Quality time with my granddaughter! On the way home I realized I was exhausted. Ha-Ha.

I read this interesting article about women and their hair. The photo of above is of a famous moment in the celebrity, Brittany Spears’, life. She shaved her long hair off. I mean shaved it off. Yes, in her life she was screaming for help. But sometimes cutting our hair means we are ready to get down to business and make some huge changes in our life. Cutting our hair signals that we are ready to begin. I cut my hair off. Funnily enough the hubby did not notice. LOL. But for me, I decided to embrace my increasingly curly hair and my new practice of air-drying it to allow it to curl. So I layered it. And it curled. Yay! Still makes me laugh that my husband did not notice the layers. Oh well. At least it is not purple. Yet.

You see, in my exhausted mind yesterday, I had been chewing on the fact that I am going to be extremely busy in the next few weeks. My sister-in-law and 9 of her children (and hubby) are driving their motorhome up and staying for 6 days…the day after they leave, I leave for CA. And that is in just days…it is almost August 1st. And my life will not be ever calming down, or be the same. Ever. So, why not make hair care easier? In the article I read, it mentioned that women who cut their hair (when it seems a drastic change to them) are trying to control something because so many other things are out of their control. I totally get that.

“Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Can any one of you by worrying add a single hour to your life^[?

 “And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. Yet I tell you that not even Solomon in all his splendor was dressed like one of these. If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith?  So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ For the pagans run after all these things, and your heavenly Father knows that you need them. But seek first his kingdom and his righteousness, and all these things will be given to you as well.  Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.” Matthew 6:25-34

This verse always, always gives me comfort. Yes, there are so many variables, and things I cannot control. Some days there are more than other days. Sometimes things are looming ahead of us and we are so aware of it. Other times, things just happen on their own, taking us by surprise. One of my favorite hymns is “Seek ye first” –

Seek ye first the kingdom of God
And His righteousness;
And all these things shall be added unto you.
Allelu, alleluia.
Alleluia, alleluia, alleluia,
Allelu, alleluia.

Man shall not live by bread alone,
But by every word
That proceeds out from the mouth of God.
Allelu, alleluia.
Alleluia, alleluia, alleluia,
Allelu, alleluia.

Ask, and it shall be given unto you;
Seek, and ye shall find.
Knock, and the door shall be opened unto you.
Allelu, alleluia.
Alleluia, alleluia, alleluia,
Allelu, alleluia.

And I am clinging to the words of Scripture in Matthew and those expressed in this hymn. And now, well, now I am off to try and work these newly-freed curls I have into some sort of style. You know how it is when you get a haircut and the stylist does it one way, and then you have to go home and try to make it do the same thing on your own? Yeah; I am there today. I wish I could call her up and ask her to come do my hair at home! Ha-Ha! But making a simple change to take back some control is very freeing. I just hope it looks okay!!

 

I’ve got this…and so do you.

 

“Then the King will say to those on his right…”

So, it’s getting real. I am making travel plans and arrangements for rental cars and return flights and packing boxes and getting medical care…my mom is actually moving in with us. For sure. The end of August. My mom has Alzheimer’s and dementia. It’s a mixed bag of symptoms and I would say she is not your average Alzheimer’s patient. If you did not know she had it, you would not think she had it. Unless you chat with her for more than 10 minutes, and then you will know. She takes great care with her appearance and pays attention to fashion. She always wears make up and matching jewelry. My mom does not look 87 years old. She’s a tiny woman, at barely 4’10”, but she is an amazingly strong woman. She left everything she knew and was familiar with, and as an only child, left New Zealand to come to America to follow my dad’s dream. She made a life here, for herself. She loves America and her family. She would do whatever it takes for any of us, who are lucky enough to have her love and devotion. And now she needs our help.

Why do I have this pit in the center of my stomach??? My son said, “Grandma won’t take over the family here; she’ll just be another one of the kids.” Boy, I sure hope so. We are all a little nervous about the impact of having her here. I haven’t lived with her since before I was married. I have been married 33 years this year and with my husband for over 35 years. So, its been awhile since she and I were roomies. And trust me, the moment I turned 18, I moved out! I was back and forth over college a few times, but since my 20s I have not lived with my mom. This is going to be a huge adjustment. But I also know this is what is right and what will be the best for us all. I trust God and His plan for us.

And when this pit develops in my stomach, I continually think back to these words from the Book of Matthew, Chapter 25, verses 30-45:

“When the Son of Man comes in his glory, and all the angels with him, he will sit on his glorious throne. All the nations will be gathered before him, and he will separate the people one from another as a shepherd separates the sheep from the goats. He will put the sheep on his right and the goats on his left.

 “Then the King will say to those on his right, ‘Come, you who are blessed by my Father; take your inheritance, the kingdom prepared for you since the creation of the world. For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, I needed clothes and you clothed me, I was sick and you looked after me, I was in prison and you came to visit me.’

 “Then the righteous will answer him, ‘Lord, when did we see you hungry and feed you, or thirsty and give you something to drink?  When did we see you a stranger and invite you in, or needing clothes and clothe you? When did we see you sick or in prison and go to visit you?’

 “The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’

 “Then he will say to those on his left, ‘Depart from me, you who are cursed, into the eternal fire prepared for the devil and his angels.  For I was hungry and you gave me nothing to eat, I was thirsty and you gave me nothing to drink,  I was a stranger and you did not invite me in, I needed clothes and you did not clothe me, I was sick and in prison and you did not look after me.’

 “They also will answer, ‘Lord, when did we see you hungry or thirsty or a stranger or needing clothes or sick or in prison, and did not help you?’

 “He will reply, ‘Truly I tell you, whatever you did not do for one of the least of these, you did not do for me.’

In the old days, families lived together in multiple generations, with grandma and grandpa around all the time. We now opt to warehouse our senior population. But we need to concern ourselves with the fact that more and more people are going to need our help as they age. Watching a recent “TED Talk” I learned that the statistics show that more than 70 million people will have Alzheimer’s in the coming decade. Do you realize how many people that is??? There are 210 countries in the world with less than 70 million people. Karachi, Pakistan is the most populated city with 14.5 million, followed by Shangai and then Mumbai, India. The three together do not equal 70 million. New York only has 8 million, and Los Angeles just over 3 million. I don’t think we are prepared for 70 million people to have Alzheimer’s. And when there are 70 million people with Alzheimer’s, I fear for their very lives. Because the culture of death is all around us. There have been more than 22 million abortions worldwide so far this year (according to the site, NumberofAbortions.com).

22 Million abortions in 2017 – so far. Staggers the mind. 70 Million with Alzheimer’s in the next decade. Hard to fathom. And I am preparing to care for just one life. One life. I think it is the least I can do.

“The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’”

 

 

Sensory and informational overload, God and a fern…

I know, another photo of the beauty up here. But I can’t help it! This weekend we were privileged to tour a national park and it was so amazing. The couple we shared it with made the weekend even better. But, sometimes I get overwhelmed with input. You know how sometimes you can just get sensory and mental overload? I got that. My brain was blurring what I was seeing. Too much nature over too long of a time. LOL. It sounds awful, doesn’t it? That I saw too much beauty and my brain shut down? Sadly enough, it did. Perhaps if I lived in a completely different area, it would seem different or fresh. But it quickly became “more of the same.” Yes, it is stunning and amazing and beautiful. But when you drive in a bus for 8 hours in a national park, your brain starts to rebel a little bit. I had to fight to not take a nap!

Have you ever felt overloaded with information? I know that my kids have complained about it while studying for exams, and I recall the feeling in college, too. You actually look forward to the test, in some perverse way, to spout all that information you have been cramming inside your head, just to get some relief. When you study for the test, cramming just gives that information temporary residence. Once you take the test and spew it all out, most of us retain very little of it. And I was worried about that this weekend. I was seeing so much beauty and nature, I was concerned I would not (a) appreciate it to its fullest, or (b) retain my memories.

Sometimes when we are around something too much, we forget the beauty and the incredible part it plays in our lives. Sometimes we even forget we live among beautiful things, because we have had it all our lives. I’m going out on a limb here, but sometimes it reminds me of former smokers or drinkers, who love to talk about how life is better now, while you sip that glass of wine. Or, worse yet, converts. To whatever it is you already belong to, a convert’s joy and fervor almost drives you away. Ha-Ha. Unfortunately, I am a former smoker and a convert. So I have been teased and teased again for my excitement and fervor.

This weekend, I met some people traveling by cruise ship, who were bussed and took the train to where we were visiting. We had a nice chat. One lady was from Los Angeles and the other had retired to Tennessee. They meet at this hotel each year and go on cruises together, with this national park as their starting point. Their perspective on the state I live in was interesting. They love looking at it, but “could never live here.” Too much sun in summer, and not enough in winter. Although they did say they loved the long, summer days and mild temperatures, the winters scared them.

And I found myself listening in my head to all the things I had heard and seen this weekend, and some thoughts came to me. It made me sad that others loved where I lived, but “could never live here.” How often do we become lax and cynical about our faith, because it has always been there? For those of us who are new and discovering our faith (I’ve been learning and discovering for over 30 years now) we seem to notice all the little details and nuances, because we are learning. When it becomes old hat or repetitive, we need to take a look inside. Just like I was dismissing all the grandeur around me this weekend. I had to mentally slap myself in order to amp up my excitement and joy over what I was experiencing. I also knew I was cramming a lot of information into my little brain, and I desperately did not want to lose any of it. I quickly did a photo album on my FB page, to share with others, and I am posting photos here, as well as thinking about all of it. I am hoping it will stick!!

Some of us are suited to small, intimate gatherings and crowds just don’t cut it for us. We can relate one-on-one, but could never speak in front of a crowd. Sometimes we get what is called “over stimulated” and cannot wait for quieter, simpler interactions. I spent 8 hours on a tour bus peopled with complete strangers, with a wide range of personalities and excitement levels, not to mention traditions, cultures, and even languages. It was a good experience for me, but I could not wait to get back to the quiet of our little car and just the 4 of us in our party. I felt so full of voices and sounds and sights…I needed quiet. So off to our hotel rooms we went, to rest up before dinner. We had some down time and then enjoyed a patio dinner before rushing inside to avoid the rainstorm! What a memorable trip with some really fun traveling companions!

Do you ever attend Church at a new place? Like when you are on vacation? And you don’t fit in, or you stand out, because you are different? We stopped at this little town on our way home and went to the most amazing little place, the “Roadhouse.” What a great experience we had. It is a family-style restaurant and hostel for people who are going to scale the large mountain we had just visited. The place is not fancy in any way. And I loved it. They had chairs and benches, lots of old photos and flags, telling the stories of people who had scaled the mountain, and those who had lost their lives attempting their climb. I enjoyed the best Mushroom/Swiss Quiche I have ever tasted. They are not afraid of mushrooms! And we all tasted some raspberry/rhubarb wine that was divine. I even brought home some hand-made cinnamon rolls we had for breakfast this morning. It is a place I will gladly return to again. But did I fit in? Not really. In some ways, yes I did. But one of the funny things is that I truly didn’t care. I just took it all in and found enjoyment where I was. We ran into people we know, whose daughter lives in a small town in Northern California, where dairies are around every turn in the road, and we know people in common. How random and how perfect for our weekend!

How often do we become “sensory blind” and not notice what is around us? How often do we miss little joys like a fantastic mushroom quiche served in a building that has been there since the 1800s? How often do we miss the nuances of life because we have become inured to them and don’t notice?

This can happen in our faith life, too. Every once in awhile I have an amazing experience where God physically and emotionally touches me, and makes me know He is truly here with me, in person. But for the majority of time, I trust. I have faith that He is here. I don’t worry about finding Him at each liturgy I attend. Some people look and if they do not see Him or “feel” Him, they leave. They want an “authentic” experience each and every weekend. And sometimes looking so hard overloads their input….like I experienced this weekend at the national park. We have to be conscious of our surroundings at all times, looking for the gentle whisper of God everywhere. I experienced that this weekend, imbuing myself with nature and the grandeur in which I live, learning to appreciate this all over again. Each and every time we pray, we read Scripture, or we attend Liturgy, we need to renew ourselves and our faith. And quite often, we will find something unexpected, like a fern growing so far north…

The pain of memories…

So some days there are moments when your head just explodes. Sometimes it is a result of not enough caffeine (rare in my house) or not enough sleep (becoming the norm), and sometimes it is fall-out from interacting with others. For me, it has been a combination of moving (the physicality of it all, in addition to the emotional stress of relocating) and of trying to restore order and normalcy to our life habits, in addition to the preparation for my mom to come and live with us. So much change!!

My true pain came from a FaceTime session with my ailing mom. I realized how much this stupid disease is stealing from us all. She had no idea who my grandchildren were, nor did she truly understand what she was seeing. I took her on a tour of our new home, and showed her the room she would be living in, as well as her bathroom. Her comment was, “Well, at least I don’t have to go outside in the snow to go pee.” And we chuckled at it. (She has some odd, but common, misconceptions about life in the “Last Frontier”).  And then, as I walked from the bathroom, around a corner, to the living room, she asked me, “Are you ever going to move to a bigger house?” She was back to the house we just moved from, in her mind. It took about 3 minutes. And when my sister and I reminded her that she could not stay where she is, she said, “I’m not leaving here until I die.” And she was adamant about it. My sister and I exchanged looks, knowing this will be such a hard transition for her – for all of us, really.

But what prepares us for this process? Not much, really. I have not taken a course on caring for aging parents (I probably should look into that). I know my mom will probably become a toddler again, in some ways. It hurts my heart for her and her dignity. And dreams we all had of growing old and sharing our children and grandchildren. I am hoping that being around my grandchildren will energize her (or wear her out! Ha-Ha!).

And I am confused, as well, by all this information I keep seeing about why the preponderance of dementia and Alzheimer’s disease is so rampant in the USA – some link it to our diets, some to our sedentary life style, or processed foods, or the mercury in all those old vaccinations we were forced to get in the 40s and 50s and 60s. There are now so many dementia patients who are only in the their 40s! And it is not in Europe or elsewhere as pronounced as it is in America. I question standard medical practice and embrace much that is considered alternative. Why? Well, I grew up around medicine and I know they play at it. I have seen doctors create solutions on the fly, going against normal procedures on a whim, and having it work out better than what they would have achieved, had they not been creative. I have seen chemical mistakes turn into cures. My brother broke his hand – crushed his fingers – on a Saturday afternoon when he was, I believe, 14 or 15. He was one of the star running backs at our high school. Did my dad rush him to the local ER? No. He drove him about an hour away, after having called his friends (no cell phones in those days) who met him at the hospital where they all had faculties, and they experimented and came up with a casting system (it was replaced several times during the season) that would allow him to pass the referee’s requirements thereby keeping the season intact. Did my parents pay for that? They did not. Did my brother get excellent medical attention? You bet he did. But medicine and research of his incident was used as the payment. He was their guinea pig. My point? Science can be flexible. There are thousands of stories of doctors and staff using their families as guinea pigs. So I know there is stuff going on out there, for this horrid disease. I also KNOW that big pharma has a hand in all of this. Why cure Alzheimer’s and dementia when there is money to be made off the victims? Why cure many of these horrible diseases when healthy patients don’t need to see their doctor or take their medications as often or as long? When did medicine become pharmacy instead of prevention?? When did dietary and exercise advice become a prescription or a surgical procedure? When did doctors stop treating the person and just focus on the symptom?? It makes my head spin.

After my frustrating FaceTime with my mom, with my head exploding, I laid down on my bed. I diffused lavender essential oil on my dresser. I cuddled with my cat. I cried for my mom. I cried for my kids and grandchildren, too. I have a parent with Alzheimer’s, which means it is more likely I may get it, too. My dad has Parkinson’s Dementia. (I am not sure about my possibility for Parkinson’s, but it is out there). But it seems like the medication he is taking keeps him more with us than when he was first diagnosed. (Shocking result, to be honest. I seriously doubt our pharmaceutical world). He is having more Parkinson’s symptoms and less of the dementia, although he had to stop driving. He has a hard time even walking some days. His speech today was slurred, but as we spoke longer, his voice got steadier and we had a great conversation. I cried. I know my parents are leaving me. And I realized how lonely that can leave you, even with a spouse, children, and siblings left behind with you. And I cried for my future. How long do I have with my husband and children, and grandchildren? Moving exhausts you; it truly does. I am pretty spent. And the future is just so cloudy, surrounded by lots of tears.

I will rise up. I know I will. My exhaustion brings on melancholy and thinking. Ha-Ha. Maybe I just need that cup of tea and a break! I know my world will continue through my sons, daughters-in-law, and grandchildren. And I know I have lots of time to spend with them, making memories for them to hold after I am gone. Right now, I am still facing a garage full of boxes. Many of them contain my memories. So I will bask in those wonderful memories, as well as embrace what is before me. I will also prepare for my future. My hubby and I realize we need to return to our Whole30 eating regime and add back in some supplements for our future health. We need to stop being lazy in food and meal prep, as well as getting ourselves healthier. Mindwise is back on the menu for me!

I still may have to escape to the mountains for some much needed respite. And believe me, I know that sounds funny, coming from someone who lives in Alaska, in a town of just 8,845 people! But the mountains do call to you! Almost as much as all this green growing all around me gives me peace, the mountains give me stability. I know I am tired. And I know I am blessed. I also know summer is coming. The sun will help. So does God. 

 

 

“…I don’t have to worry about you anymore…”

With Facebook, if you are not familiar with it, you are given prompts each day as you log on to your account, to view posts from that same date in years gone by. They will show you things you have posted on that same date, each year you have had a Facebook account. It is kind of cool. And today I was reminded of some blog posts I had put on Facebook. One was from just two years ago and it was about me and my dad, communicating on a different level. I remarked that we were communicating as peers, and not in that authoritative/subordinate thing we get into with parents. And I was rejoicing. Because it was so very different.

I actually remember dancing with my dad like this. We were on vacation, I think we were up in Northern California, near to Lake Shasta. We were staying at this lodge/hotel place and each evening, we got fancy for dinner (well, it was the 1950s and that is how you did dinner in those days. Fast food had not been invented, yet. I have a story about that, too!). And the orchestra played that wonderful song, “Thank Heaven for Little Girls” by Maurice Chevalier, and my dad asked me to dance with him. It makes me cry to think about now. What a precious memory. I believe we have photos somewhere from that vacation. My dad is the same number of years older than me, that I am from my oldest son. And so I measure things with him, to my relationship with my son. I can clearly recall my son and I at this stage, too. Soon, he will be at the same place with his daughter. It’s one of those “circle of life” moments where disparate things gel into a linear relationship and you can clearly see how connected they are.

Ahhh…the 1970s. Gotta love those pants. Yeah; that happened. And something happened with me and my dad. We argued – a lot. I spent a lot of my teen years on restriction for some broken rule or another. I totally get that phase. I cut my long, long straight blonde hair into a Dorothy Hamill haircut. And entered college. When your world explodes because your knowledge is exploding, relationships at home explode. It seems like pretty much all of my friends had explosions here and there with their parents. My parents were “too old school” and too “out of touch,” and being British, just weird. And funnily enough my youngest son recently told me that he and his brothers all think my husband and I are “old school parents.” I sort of took that as a compliment. Ha-Ha. I don’t think that was the reaction he had expected!

Me and my Dorothy Hamill wedge haircut exploded into the world. And my dad was often left out, shaking his head at my choices and decisions. Somehow, in amongst all that exploding that was going on, I kept finding myself at Church in some form or another. I went to the Mormon Church, I explored Judaism, I loved Zoroastrianism. (Zoroastrianism is one of the world’s oldest monotheistic religions. It was founded by the Prophet Zoroaster in ancient Iran approximately 3500 years ago). I drove my parents nuts when I left my law/medical leaning education for Anthropology. They stopped supporting that exploration because they could not see how it would do anything for a career for me. I compromised by majoring in Forensic Anthropology and Physiology, with a minor in Biblical Archeology. That way, I was still in science (to make my dad happy) and yet I could study history in a concrete way. It made, and still does make, for interesting conversations. I can even recall arguing with my grandpa (my dad’s dad) about Scottish Rite Masonic influences in society, the evils of smoking, and his problem with unions. And my dad always stayed out of those! Ha-Ha! Smart guy! I did cause some concern when I entered the Catholic Church in my late 20s. I think he still has doubts about where my faith is. But regardless of where I stand or where he stands, I still share with him my faith. I share the Psalms with him, and many of the Scriptures that bring me peace, hoping he can grab onto some of that, too. I had sent him an email a few weeks ago, with all these quotes from the Scriptures for him. I thought if he printed it out, he could look at it and find comfort. I did not realize then, how poorly his health had become and that he no longer uses his computer, or even reads. So now, I share verbally with him, when I can.

These day, however, conversations with my dad are never predictable. He has Parkinson’s Dementia, or Lewy Body Dementia, or Parkinson’s with Lewy Body Disease. Whatever way you slice it, my dad is fading away. And very quickly. In many LBD (Lewy Body Disease) patients, their ability to process information and be cognizant in a conversation becomes greatly hampered, until there is no true conversing going on. They suffer hallucinations and become easily paranoid. They can also become increasingly angry and violent. And because of all of that, I am mourning my dad already. He is still with us, but his decline is becoming so very rapid. He is 90 years old. And he has admitted during his lucid moments, that he is just tired. And it makes me sad. The man I danced with can barely walk with his walker. Sometimes there is humor in that, because he did fall last week and no one saw him laying in his driveway. He could not get up but happened to have his camera with him. So, being the creative guy he is, he laid there taking photos of ants and dirt and other bugs. (He loves Macro-photography). He remembered what had happened and related it to me, all the while laughing about it. It was one of our good conversations.

And today I am psyching up to give him a call. Because with this disease, we just don’t know how he will answer the phone. Last week he did not want to talk at all…he was in an angry phase. And a day before that, we were laughing at his walker episode in the driveway. And I have to prepare for those bad days. I pray for good ones, but I prepare for the bad ones. I have also come to realize that quality of life is truly a concern. With all the dementia styles in our extended family, I have come to see that quite often, if our loved ones knew how they were behaving, they would be mortified. And so I pray for them to find peace. To find calm. To find gentle. And to feel the love we have for them. And I find myself expecting the man in the photo below, whenever I speak to him. But I need to drill it into myself, that is not who answers the phone. Today, I am sad about that. Life is going on and moving past us. I recall a conversation between my dad and his dad. We were walking into a party to celebrate my grandparent’s 60th wedding anniversary. I was carrying my oldest son on my hip as a baby. My grandpa said to my dad, “Well, son, I guess you’re old enough now that I don’t have to worry about you anymore.” We all laughed as my dad said, “Gee, thanks, Dad. You do realize I am 60 years old, right?” And here I am, ready to chat to my 90 year old dad, and I am 60. There’s that “circle of life” thingy again…cue the music from the Lion King…I’m going to call my dad, now. Love you, Daddy. I do. Already missing you…and missing the “us” we didn’t get to have.

 

“I am a sojourner…”

It was a loo-oo-oo-ng weekend. Hubby flew out of state to see his mom in the middle of the week, and I was here, trying to motivate our youngest, who is suffering with an extreme case of senioritis, and I was doing that among a myriad of other goings-on. And in the middle of all my personal chaos, I was blessed to have lunch with a newly-made friend. I really enjoy her company. We went to this restaurant that has been around forever. It is decorated in typical-tourist-Alaska style with rocks and bears and mining tools. But it is just such a fun place to hang around. The servers are genuine people. The menu is simple fare and I had the best BLT I have had in ages. It was a double-decker and the fries were to die for. They even left us an entire pot of coffee! What more could two gabbing women ask for?? Ha-Ha! And we were there for 3 and a half, gloriously uninterrupted, hours on a Saturday afternoon. We gabbed, we shared, we laughed; I really enjoyed myself. Oh, and we ate, too! LOL!

The hubby dragged himself in late this afternoon, after the airlines lost his luggage, and then found it again, and after he stopped at the auto supply store to get oil…and then he put oil in our son’s car…he was so tired. And tomorrow at some ungodly hour, which I will be sleeping through, he jets off again for a week of work away from home. With no respite in-between. We knew he’d be squeezing in his visit to his mom, but did not realize how tired he would be.

We are on the precipice of great change in our lives. Our parents are aging and are all at points where their health is not good – at all. We are making huge changes and altering many lives in just a few weeks. And helping to support family members facing their own issues. It seems like we are just waiting for the first domino to fall…and then the rest will follow suit.

We bought a house. Which my middle son told me was the first thing on our list. I guess it is a list. I had not thought of it that way. I read an article today about making lists in our lives to encourage our growth in faith. We need to add things to do, to make time to do all the important things. Things like praying. And reading Scripture. And actually going to church. We are all in different places in our journey to our forevers. My steps are just that – my steps. You may be leaps and bounds ahead of where I would like to be, or perhaps I can turn back and see you, trudging along behind me, making your way.

“I am a sojourner in the land; do not hide your commandments from me.”    Psalm 119:19 

This quote from Psalms stuck with me because I think it describes what we are going through. It is like we are all moving towards that goal – eternity – and many of us are much closer than others. Many of us have taken direct routes, while others of us have a very convoluted journey. Our family is a mixed bag of believers, non-believers; those who practice their faith and those who tolerate faith in their lives. And as a family, it feels like we are making decisions and checking things off our lists, making the pathway a little clearer. And I think that for the first time in my life, I am feeling the journey.

We wake to that alarm, we drink our coffee, we head out into the world. It is the daily grind. We get into traffic and make our way along. But every so often, something happens that makes you draw a quick breath and stop. And in that pause, you can feel the movement, the journey, right beneath your feet. Or within the pumping of the blood through your veins. Or in each breath you subsequently draw in. And in that next moment, the world is different. We sense it; we know it; but some of us refuse to recognize it in any real, and tangible, way. And when people refuse to acknowledge these pivotal moments, they react in sometimes odd ways.

Quite often, when we sense change coming, we react in anger, directed towards where all that movement is coming from. Sometimes people lash out at those they love, because they fear the changes, the movement, the momentum towards whatever it is they sense is coming.

And when we are dealing with our aging family members who are suffering disease, and all the effects on their bodies, minds, and souls, we can witness moments of lashing out and anger, which is brought on, I believe, through frustration. We have all seen images of little old ladies sitting around tables looking ready for a date, and none of them are speaking – they are staring off into their minds and their pasts. And sometimes you see others in nursing homes or in hospitals, who are yelling and angry at the world. We all react differently to changes in our world, our lives, our bodies, and our minds. It is part of our journey. We bought a house, to bring my mom home with us for the last section of her journey. And we’re all a little agitated. It has been over 40 years since my mom and I lived under the same roof. The hubby and son have claimed part of the 3rd garage as their “space.” Do not blame them, at all. And mom, due to her aging and suffering with Alzheimer’s, doesn’t do change well.

Tonight, as I sat in Church, I prayed for my entire family. My blood family, and my extended family. We fondly refer to extended family members as the “married-ins.” Ha-Ha. I am a “married in” to my husband’s large family, as he is to my much smaller, but fractured family. And I prayed for my friends. My long time friends, and my new friends. I prayed for my sons and their families, and my youngest son (the senior-itis boy!!) as he comes to the close of his high school experience and embarks on his career. Because this journey we are all on, well, we come together once in awhile and we share the road together. And sometimes we need to rely on family and friends to help us navigate this path we are on. It’s when we lean on each other.  And so I prayed for us all.

“Do not cast me away when I am old; do not forsake me when my strength is gone.” Psalm 71:9

“Even when I am old and gray, do not forsake me, my God, till I declare your power to the next generation, your mighty acts to all who are to come.” Psalm 71:18

There is much we can learn from our older generation. They need not be placed into “holding cells” or “old-people prison” or even “gilded cages.”  My mom said to my sister one time, something to the effect that, “It’s nice where I live, but it is still a prison.” And I really don’t want anyone to feel that way. Not ever. Life is to be lived joyously, peacefully, and with love, until our last breath. And ideally, surrounded by family and friends.

Tomorrow will be another busy day; the week will be full. And slowly but surely, we will be checking more things off our lists. The hubby can come home later in the week and not have to leave again for a couple of weeks; he can relax at home for awhile. I can start packing us up to move (*The thrill is gone…* I am channeling my inner BB King). My youngest son can get closer to graduation – it all wraps up in a couple of weeks! We can get in tune with this journey we are all on and the feelings we have, as we take these next steps; steps taken together as a family.

“But if serving the LORD seems undesirable to you, then choose for yourselves this day whom you will serve, whether the gods your ancestors served beyond the Euphrates, or the gods of the Amorites, in whose land you are living. But as for me and my household, we will serve the LORD.” Joshua 24:15

“Because of your little faith.”

It’s like banging my head on the wall..why do I insist on going my own way? It always, always, is much harder. Ugh. I started out my day taking a couple of phone calls, and then diving into a headache-inducing paperwork snafu and dealing with all sorts of other annoying tidbits (in and of themselves not huge, but together, my own mountain). But I did not start out in prayer, nor in grounding myself in the Word of God. I tried to just carry on and “git-er-done” all on my own. The result? Headache, stress, rushing around trying to accomplish a myriad of small tasks, and then rushing out the door and collapsing in stress in my car.

Some days I just cannot get it together. And then I realized that those are the days I think I can accomplish everything by myself. I don’t seek prayers from people; I don’t actually ask for help; and I never even think to open my Bible or pray. How is it we can rely so heavily on our faith, and then forget to use it??

Last night I attended a talk from a retired police officer about the legal use of force. He was speaking to a group of women who all belong to this wonderful organization for women shooters. (https://thewellarmedwoman.com) Last night, I listened as this officer talked to us about armed intruders. He was saying that when we challenge an intruder with phrases like, “Stop. Don’t move a muscle or I will shoot you” we have to command them, not meekly ask them. And he also said we need lots of hours with our weapons, making sure they are in perfect condition and ready to fire; that we spend hours upon hours at the range, getting comfortable with our weapons, and that we develop muscle memory with our weapon. Then he suggested we wear them (as our conceal carry permits allow) and go about our lives, with a smile on our faces. We are aware of our surroundings, we are armed and know how to protect ourselves, and we can enjoy life – and he said, “Smile.” And it made me think.

I have been working my weapon – my faith. I have become familiar with it, developing my “muscle memory.” I have taken care of it. And I command it when I speak of it, to intruders. Right? Well, it seems to me that when I need to depend on the stores I have built up inside of me, I fall flat. I totally revert to panic mode. Which, in the case of an intruder intending to commit bodily harm, would not bode well for a successful outcome, for me. Reacting, through muscle memory, is how our faith should work. If I were to be cast on an island, by myself, what would I do? I would not have my bible or my study to do; my journals would not be with me…what would I depend on?

There are many stories and many people diverge greatly on their acceptance of these stories, but for an example, the Apostle John (and let’s not argue if it is him, John the Elder, etc) is exiled to the Island of Patmos. Patmos means “my killing” and it is believed to be a sterile island in the Aegean Sea. It was common practice for the Romans to banish from their lands people who disagreed with them. We also know they were very fond of crucifixion as a form of punishment. The story goes that while on the Island of Patmos, St. John penned the last book of the Bible, the book of Revelations. It is agreed that this was around 95AD. On that island of banishment, John did not wallow at being on a sterile island (not much grew there; very little flora or fauna) but instead, He listened to God and he wrote the inspired words of God, and shared it with the world. The book of Revelation. Wow. Me? I more than likely would have died.

“When they came to the crowd a man approached, knelt down before him,
and said, “Lord, have pity on my son, for he is a lunatic and suffers severely; often he falls into fire, and often into water. I brought him to your disciples, but they could not cure him.” Jesus said in reply, “O faithless and perverse generation, how long will I be with you? How long will I endure you? Bring him here to me.” Jesus rebuked him and the demon came out of him, and from that hour the boy was cured. Then the disciples approached Jesus in private and said, “Why could we not drive it out?” He said to them, “Because of your little faith. Amen, I say to you, if you have faith the size of a mustard seed, you will say to this mountain, ‘Move from here to there,’ and it will move. Nothing will be impossible for you.” (Matthew 17: 14-20).

And today, in the light of my dismal trust and poor faith yesterday, I realize that I do have faith. I do. Because I realized that I was wrong in trusting only in myself. I sought prayer from friends and many offered more in the way of help, as well. I performed a task that I did not wish to do, but was able to do it with a thought and prayer of thanksgiving. In my gratitude journal I wrote, “I am releasing my wants and melding them to the wants and needs of my family and the desires for me that God has in store for me.” That is the start of great faith…trusting in the small things. Because truly, my tasks for the day were small things. There were many of them, but they were small. And God is blessing us, over and over again. Truly blessing us. Sometimes we do not see the blessing, because it is clouded by our wants and desires. I know that I need to subsume my desires and wants, and allow God to direct my steps and my future. Because without Him, I wander, I lose faith, and I panic. How silly of me. He is always here, waiting for me. Always.